mr. gasby. mr. gasby: thank you, senator collins. i want to thank you for having me, ranking member mikulski. i love my country. i'm proud to be an american. i'm a kid from brooklyn and i never thought i would have an opportunity to try to make a difference. this is the one time that i know that i can make a difference because i've seen what my wife has gone through. i've seen a woman who virtually could do everything, who could sing, who could dance, who could look at food and taste it and then cook it exactly the way it could be in a cookbook. who did a television show, who did a hundred radio and television commercials. who basically always gave back. and now has to wait and -- has to wait for people to help her. i'm reminded of the song that, of all people, jay-z and kanye west wrote and it's -- there's a lyric in there, called "the pain ain't cheap." and this -- the pain ain't cheap for the five million americans who are suffering with alzheimer's disease. the pain's not cheap for the 15 m

smith and mr. gasby, when we were talking informally before this hearing you talked about a public service announcement that you had made. could you share with everyone here what you did to try to expand awareness and participation in clinical trials? mr. gasby: yes, senator. the brain health registry goes to get people to participate and giving information so they can be considered for drug trials. one of the main impediments to getting more funding, more research, more drugs online is that we don't have enough people to participate so that they can be considered for these drug trials and particularly in communities.there's been a -- with the tuskegee experiment with things that happened in the past, myths and some reality african-americans and people who are not caucasian are not participating. what most people don't realize is that to bring a drug to market costs billions of dollars and you need to have a genetic pool, a diverse pool. and so you need people from different backgrounds. you need women,

mr. gasby? mr. gasby: thank you, chairman collins. i want to thank you for having me. members of committee. i love my country. i'm proud to be an american. i'm a kid from brooklyn and i never thought i would have an opportunity to try to make a difference. and this is the one time that i know that i can make a difference because i have seen what my wife has gone through. i've seen a woman who virtually could do everything, who could sing, who could dance, who could look at food and taste it and then cook it exactly the way it could be in a cookbook who did a television show, who did 100 radio and television commercials, who basically always gave back and now has to wait for people to help her. you know, i'm reminded of a song that of all people, jay z and kanye west wrote. there is a lyric in there called "the pain ain't cheap." the pain ain't cheap for the 5 million americans who are suffering with alzheimer's disease. the pain is not cheap for the 15 million caregivers that each and every day, every waking hour have to struggle as we do, as a couple, my best friend,

stemley and mr. gasby, you are doing incredible work to make sure your family is taken care of and we understand the sacrifice and the unselfishment with which you approached it. and ms. smith, it takes courage to raise awareness of the disease. so thank you for being here in highlighting that. and dr. hodes and dr. petersen, it's great to see both of you again. thank you for coming back to update us and thank you for your continuing work. and dr. wierman when you have conversations with your patients, can you broach the subject? do you tell them what they're going to have to plan? because here's a report in "the washington post" that says that less than half the people with alzheimer's reported that they had been told about their dementia. so what do you do when you advise your patients? heidi: i work with folks with dementia at all stages so what they hear is different at different stages. early on it's about the diagnosis and what treatments are available. and where they're at now, addressing current is

mr. gasby. mr. gasby: thank you, senator collins.ant to thank you for having me ranking member mikulski. i love my country. i'm proud to be an american. i'm a kid from brooklyn and i never thought i would have an opportunity to try to make a difference. s the one time that i know that i can make a difference because i've seen what my wife has gone through. i've seen a woman who virtually could do everything, who could sing who could dance, who could look at food and taste it and then cook it exactly the way it could be in a cookbook. who did a television show who did a hundred radio and television commercials. who basically always gave back. and now has to wait and -- has to wait for people to help her. i'm reminded of the song that, of all people, jay-z and kanye west wrote and it's -- there's a lyric in there, called "the paint ain't cheap." and this -- the paint ain't cheap for the five million americans who are suffering with alzheimer's disease. the paint's not cheap for the 15 million care givers that each and every day, every