acronym is p.p. . i was. four years old when i first remember having a first attack from the sun and i was diagnosed when i was a weapon the pain is indescribable it's feels like really really bad chemical burn but it goes through your skin in your most down to the bone and there's no relief painkillers don't work and the last for five days to a week pretty debilitating. and i was dating jason i mean it was definitely is a different experience because there's two things that night but i mean jason's a person who. peeping south side of the box really easily and so i never felt like i was missing anything i mean. just like i mean it's just so he's so happy you know he didn't play victim to the world he didn't play like. that he couldn't do anything. you were. there's no cure. genetic disorder. we decided we would have children obviously because we have two of them and. actually neither one of them have a p.p. and we genetically tested them for that but if they did have a p.p. we were not a very good at it eithe

actually neither one of them have a p.p. . and we genetically tested them for that but if they did have the p.p. we would not a very good at it either because we both know they can have a fulfilling life with the p.p. you know and jason's an electrician he he's the provider of the family he works full time right now i work as an in-house maintenance for a manufacturing plant i work during the night shift and that way you know i don't have to be in the sun is something goes wrong outside the plant i can you know go up in the darkness and not have to worry about having and he could be attack on cloudy days i can still i can so get sick but it's like. so i got a sunny day i get like three minutes we're going. to cloudy day. from an hour to two or three hours. you know family time frame times when people went to the weather for like what what's the weather going to be like you want to take make me want to eat you know like a strange thing to watch a movie is reversed you know why is this like. to go out and. play out in the rain p

they look really pave the way to a diety just know that because p.p. was at teluk they key was a minor key but as a body as is the biggest of blood it is i am closely jovial that in one minute job a bad going on is that he is i hate us and. they made a limp body and blood goes. back then it may seem odd to say. a little. oh. tell me may you be. what i. do is see will. i just give a devil by the was made in one movie. my loan get my make. fourteen only i said. the made in one movie is a lot heck you know me as i do it made but it would if they got do with. they give up just. as i was leaving because in the bit about going to sleep well since i was in libya on a but on i was it will be a key game of this immediate life we. don't know the two to need to. then. diminish now but i. i don't have a lot of the top look it's just. the neck to let anybody know what year my love was not just because. it. was the entire ball and an oz big article of me to admit i remembered to not to look that up but the look you guys looked. like almost a day i got home i did. my

us met oh maybe safely they believe that if they look really peeved so many diy dismembered because p.p. was your talent they key was a minor key but as a body as is the biggest of blood it is are you close a jovial lot in one minute job a bad one honest that he is i hate us and. they made a limp body and blood goes. like them it may seem odd those changes that. you know. how. tell me may you be. what i. do is see will. others give a devil by the was that it made in one movie. malone can one make. only i said. the made in one movie is a lie hank you know me as i do it may have whatever to. do with him said. his name as i was leaving because in the bit about going to do sleep well since i was. on air but than i was it'll be a key game of this immediate life we. don't know the to. do. then. i don't. i don't have a lot of the topic is just telling the neck to let me know how your love was sucked out because it. was the entire bargain and i was a big article of me to admit i remember to not tell it that i have to follow you guys. like most idea that somebody. might him a little enough but i

they look really pave the way to a diety just mad because p.p. which i like i keep my love my key but as a broad as is that he has a blog of his is are you close and jovial out of a new job a bad one on this that he is a hit because of. you you made limbaugh a big bad goes. back then it may seem odd to say. oh. tommy may you be. i mean what i. did see will. others give a devil by the was made in one movie. my lone gunman make. leggy. only i said. the made him and maybe it's a lie hank you know me as i do it may have whatever to. do with him. as i was leaving because in the event about going to sleep well since i was. on him but than i was it'll be a key game of this immediate life me who i don't know. then . demanded snap and i. i don't have a lot of the public is just telling me that a lot of money when i don't buy your love. was didn't involve animal was a big article of me to admit i'm going to not tell you that i have to follow your. blacklist idea that somebody. might him a little enough that i've had a lot of them go to the world almost sic

money and then of course the opposition from the spanish parties have said public us although from the p.p. has said it was an act of betrayal betty betty has told us humiliating for the spanish people that they have gone to catalonia to speak with the regional president there and also there actually the fact that they are dealing with the regional power and so the fallout is well we saw what the fallout will be but for now thank you so much for that update publicly elliot's u.s. allies including germany have appealed for clarity over washington's foreign policy well this comes after defense secretary jim maddest resigned in protest at president dollar trumps decision to withdraw american forces from syria that mouf was undertaken with no consultation with the pentagon or u.s. allies on now the search is on for a successor to mattis widely regarded as the last check on the president's unilateral foreign policy decisions. here with secretary of defense james much as has been widely viewed as a stabilizing force and u.s. president donald trump's cabinet. many had hoped that the four star mar

even a few months to socialist say that they want to form a government but the other parties of the p.p. the party of the of the nose are determined to form a government in on the loose and they haven't ruled out including vox in that formation so in the next days and weeks we'll find out whether vox do actually enter the under lucien parliament as part of the government which is certainly something which is going to shock many spaniards had a region to watch publicly as were poured in from the spanish capital madrid thank you so much for your insights. let's talk football now because football is prestigious event on the award will be handed down tonight to the top men's player of twenty eighteen as voted for by a journalist there are also two new awards for best young player and the women's vote on the men's a favorite look up margaret ship follow champions league success with real madrid with a fantastic world cup campaign leading his team croatia to the final in russia in the young a pulley category france world cup winner killian a is expected to take home the trophy while of barcel

to the p.p. much of that's at the village because i've been in the tie for nineteen. even of an internationally renowned artistic directors de australian very costly has had. berlin's komi show person two thousand and twelve plenty of time to give the opera house a good shake up his appointment book is packed but we managed to get him to ourselves for two whole hours he's easygoing and casual. let's talk about these he shows i really love the t. shirts here where i was going to ask so i can take the jump with. do you pick your teeth for every every occasion no no no sometimes the t. shirt i buy the t. shirt i don't wear it for six months it's always decided at the very last moment and it's never actually why i must wear these t. shirts for this rehearsal this premie. in melbourne that's where you're born born and raised and educated in australia when did you realise that you were not a proper australian i didn't feel at home. in a strange. because all the interests that i had or that i was being. introduced to music and theater which. didn't really seem to come from m

to the p.p. much less of the vista gets up in the top ninety. even of an internationally renowned artistic directors de australian very costly has headed berlin. since two thousand and twelve plenty of time to give the opera house a good shake up his appointment book is packed but we managed to get him to ourselves for two whole hours he's easygoing and casual. i really love the t. shirts you were i was going to take that jumper. now that looks good. do you pick your teeth for every every occasion no no no sometimes the t. shirt i buy the t. shirt i don't wear it for six months it's always decided at the very last moment and it's never actually a why must wear the t. shirts for this rehearsal disprove me. in melbourne were you born and raised and educated in australia when did you realise that you were not a proper australian i didn't feel at home. in a straight. because all the interest that i had or that i was being. introduced to music and theater. didn't really seem to come from my daily reality. and so i created a sort of parallel world bas

money and then of course the opposition from the spanish parties have said public i saw the from the p.p. has said it was an act of betrayal. coldish humiliating for the spanish people that . they have gone to catalonia to speak with their the regional president there and also there actually the fact that they are dealing with the regional power and so the fallout is well we soft assess what the fallout will be but for now thank you so much for that update publicly alias. why are in germany the nation's the last underground coal mine is closing today for two hundred years called was the driving force behind this country's economy dominating industry infrastructure and people's day to day lives but the reign of king cole is coming to an end miners have been gathering for ceremonies marking the closure in the who are valley today for a final time many of the fifteen hundred workers have met at the cross for an annual mind which has been in operation since the nineteenth century you're looking at live pictures there from that ceremony which is taking place as we speak the shutdown is happen

money and then of course the opposition from the spanish parties have said public us although from the p.p. has said it was an act of betrayal. coldish humiliating for the spanish people that they have gone to catalonia to speak with the regional president there and also there actually the fact that they are dealing with the regional parliament so the fallout is well we we saw have to assess what the fallout will be but for now thank you so much for that update publicly alias and we want to shift our attention now to pakistan where christians are increasingly the target of deadly attacks in part due to severe blasphemy laws in this republic the most high profile case involves. a roman catholic woman recently acquitted of blasphemy with christmas approaching we're taking a closer look at what life is like for pakistan's christians w.'s miramax members of the christian community and islamabad. christmas is a favorite time of year for this christian family in islam about the cougars appreciate being together especially as their lives were completely turned upside down seven years ago the shot

even a few months to socialist say that they want to form a government but the other parties of the p.p. the party people. are determined to form a government in on the loose and they haven't ruled out including vox in that formation so in the next days and weeks we'll find out whether vox do actually enter the under lucy in parliament as part of the government which is certainly something which is going to shock many spaniards are region to watch publicly as we're pretty from the spanish capital madrid thank you so much for your insights. and i'm going to hand you over now to helena and opec loses a member that's right the gulf state of qatar has announced that it's leaving opec it's going it alone leaving of course the influential cartel of oil producing nations it's been a member for almost six decades in the country says it wants to focus on developing its exports of liquefied natural gas but many analysts see it as a political move as far as break ups go this one was abrupt and seemingly out of the blue here's how qatar's energy minister delivered the news that his country's fifty