the newmans meet nurse pat chibaro, an angel in a white lab coat.emember most about that day that you met the newmans? >> they were absolutely devastated. families will say, "well, when is the surgery? when is the surgery that's going to make this all -- >> reporter: all better. >> -- all go away." >> reporter: right. >> and, rtunfounately, it's a journey. it's not a surgery. >> reporter: and for the newmans the journey was just beginning. they say it was something unexpected that happened in the hours after nathaniel was born that sustained them through the early days and then the later months and years ahead. >> we turn on the tv, and it was the grammy awards. the show starts with christina aguilera singing the song "beautiful." ♪ i am beautiful no matter what they say ♪ ♪ no matter what ♪ words can't bring me down ♪ no >> i mean you talk about time and "no matter what people say, no matter what people do, you're beautiful in every single way." ♪ words can't bring me down >> we decided, like, he's going to be beautiful not because of his appearanc