he had something called pierre roben sequence, his jaw was pushed in, so he had no airway. >> they'reng list of congenital diseases. >> he has chronic lung disease, on a ventilator with oxygen, the trache, a catheter, tpn, he eats through his line. his g tube how all his medicine is administered. there's not one syndrome they've been able to find. >> he's had titanium rods to help him with his back and also with his breathing. >> that kid can't catch a break. >> the whole time mom, debbie, talks about anthony and now he's always been there. this hasn't been a traditional childhood for him. >> it's sad because anthony at second grade they asked him if he, what his favorite restaurant was and we never went out to eat. ryan can't go anywhere. >> they were faced with debbie's own diagnosis of stage three cervical cankkhacancer and curr undergoing chemotherapy and radiation. her husband ended up losing his job and even though she's working as a teacher as a high school, they've lost their insurance, so they've got no protection. >> so we've been through a lot of different life experiences.