loss. >> retinitis pigmentosa go hand in hand.r-- usher's syndrome. this is a cruel way to lose vision, because you start out able to see, so you adapt to the world like everybody else. at some point, when you are a small child or when you got older, things start to go. the night vision decarts to go. -- starts to go. and after that, the vision starts to constrict, and you soo down a tunnel -- and you see down a tunnel, which is what cameron is seeing and the vision down the tunnel starts to gradually fade away, as well. >> the genetic testing that's been so important for you, i think you have, now that you have the funds to help you get through thyou have that planned, right, now? >> yeah, i am getting the genetic testing. >> we are rooting for you. >> what a rock star. [ applause ] >> thank you for sharing your story with us. >> mom, dr. oceal, thankyou, as well. >> stick around for what's coming up next . >> in addition to carrying their babies and delivering their babies they had c-sections. >> that sorta changing the c-sectio