topics and materials of organizations and associations related to the cheap text for the rare diseases association, which became a week for the first time in this government, and the national day of rare diseases in the government. it was registered on the 13th. we, myself, among rare diseases and dear patients who had special problems and hardships with this title and came to the place of this organization , met with people face to face. we killed the president's god in one round of rare diseases at the presidential office, he had face-to-face meetings with people. i believe that we only receive people's requests, and our requests are not the secretariat. the people of the general department of inspection and monitoring and evaluation of the performance of the institutions of the honorable president, please refer to this video for the first time. they came to our center for the first time and symbolically made calls and responded with interpretations and blessings. the tibetan government and managers government by the center of public communication the presidency should be done because there is a

mother's milk or infant formula are not absorbed genetic diseases and are quite rare about 2-3 hours per million children, is severe and often associatedth enormous health risks, to keep the life of a patient with short bowel syndrome requires intermittent drug therapy, medical nutrition and the purchase of consumables for special devices for several months. mom and daughter live in the suburbs of iri every day . it is getting better, she began to crawl and play with might and main, she is teething for an active girl. now an eye, yes an eye, but the family still needs the support of the world, they are now on such nutrition, which is dripping in vienna actually 18 hours a day, is the most complex nutrients, balanced now . our task is for our baby to live at home, just to feed her daughter every day , valentina needs dozens of items of consumables catheters systems for feeding antiseptics special nutrition and solutions. infuriates this set for 12 months costs more than 5 million rubles. a young mother does not have that kind of money, but we can help just follow the qr-code on the screen or send an sms with the word care and any amount