she doesn't have retinitis pigmentosa," until she was older. then they were actually able to see the spots in her retina when they examined her. well, like, i don't have very good balance, so riding a bike was hard, but actually, my dad helped me through it, and we ride bikes together on bike trails, and we do it a lot, and i am actually a very good bike rider, and i don't fall anymore. diana: i think it's important to actually discuss it because, like you said, there are different things that you can do in order to promote safety such as carrying a flashlight, just being more careful, or trying to keep in the back of your mind, you know, when dusk is going to happen and try to get to your destination before then. narrator: where does usher syndrome come from? usher syndrome is always genetic. ushers is an inherited condition, not from one parent, but both. kimberling: the reason why it's this way is because it takes two for usher syndrome to happen. it takes a gene, a specific gene, coming from mom and one coming from dad, and they have to com