in girls, it's called rett syndrome. in boys it's very rare. he'll likely never walk, talk, dress himself or have the mental capacity beyond a toddler. >> with this mutation, they tend to have epilepsy or seizures. >> reporter: no matter what's coming, we want henry to know he's loved. to stimulate and give him exercise we do physiotherapy at home or at a hospital every day. but now there's hope henry could hold the key to a treatment. >> henry's mutation is unique in the world. but it, because it's unique is what makes it so valuable. sometimes from the rarest thing you can learn the most. >> reporter: he doesn't produce enough of a protein essential for brain function. the lab has collected henry's cells. >> these are henry's cells. we're using them to monitor the level of protein. >> reporter: she says if she can find a way to boost the protein safely, it would be a break through for henry and potentially many children with genetic disorders. we first told our story this morning on the "today" show to raise awareness of special needs childre

. a cure for rett syndrome. wants by looking at the picture cards. cards. complain it hurts when she. that is the worst thing. the worst thing. hopes that crowdfunding will help to raise £11,000 to buy one publicly. raise £11,000 to buy one publicly. —— privately. have it, she can look at different categories. categories. so then it will be her own proper voice. in the austrian mountains. above the cables on the side of the khrysh—berg mountain. of a four day scandinavian tour. about the sport of bandy hockey in stockholm. travelling on to norway. and now a look at the weather forecast closer to home. conditions, less cold across the bulk of england and wales. bulk of england and wales. outbreaks of rain. of rain. moving in, as the night goes on. goes on. pennines, especially into the afternoon. afternoon. south of that, for some, temperatures well above freezing. temperatures well above freezing. temperatures will drop as the day goes on. turning sunnier. wintry in north—west england and the pennines. pennines. to seven celsius, cold air has moved in, feeling colder as a result. in,