. >> reporter: it was just after 8:30 by the time sara matthews, her mum and baby grace stepped out ofhe pick-up truck. and into the north carolina night. this isn't the first time they have come to the ronald mcdonald house mere duke university, and it will not be the last. they are here for little grace. >> when did you find out that grace had the condition? >> it was a 20 week ultrasound, went to find out if it was a boy or girl. waited for the doctor to get us. she came and told us that she had bad news. >> reporter: grace had brain. >> me and my husband had been married for 12 years and figured we couldn't have children and all of a sudden i was pregnant. that's where her name was grace... sorry. and to find out she has something wrong with her. sorry. >> reporter: if you look at grace you can make out the outline of a shunt put in the day after she was born. it helps to remove fluid from the brain putting it back into the body. it should keep the head from the brain, but the swelling and fluid has caused problems to grace's brain. now doctors hope it can be reversed using cells f