. >> he was diagnosed with simic fibrosis. >> how hard is to it keep him alive? i know that never in a million years did i think i would have a kid with a fatal disease. and then it happened. and i have to handle it. >> one medication alone is $1,200 a month. >> if i don't have access to insurance, to keep my son alive, i need to find a job where i make a million dollars a year. >> ready? >> elizabeth fuller says after she heard about the house vote, she cried. >> i just hope that absolutely none of them have a child or a grand child, or a family member born with a pre-existing condition. >> republicans say their plan will cover pre-existing conditions. >> if you have a plan today and you have a pre-existing condition, under our bill you'll be protected forever. >> but the bill would allow states to permit insurers to charge people with pre-existing conditions more. to help cover those increased scots, states could set up high risk pools. the federal government could set up 108 billion over nine years to help pay. they said high risk pools can work but only if fu