daniil sizov turned 18 in august for several years and has been taking the necessary medicines in hiseditary neuromuscular disease. uh, well, actually myopathy, uh, which are related to the fact that u skeletal muscle in the heart muscle. the liver accumulates e non- split glycogen occurs. ah, dystrophy. e organ cells are primarily muscles, er, and. um, actually, the disease progresses this disease is incurable yet, but it can be slowed down with the help of a new irish drug. one dropper costs more than a million rubles, if earlier the circle of good bought medicines before it. now he is left without treatment. i'm already getting i missed two droppers in danil's case. interruption of irreversible consequences, but regional officials will be able to pay chennai only in one case when the patient is diagnosed with a disability e, the first or non-working disabled person of the second group. the first group danila does not have it just because of the treatment, but without him there is every chance to quickly become a bedridden invalid, only the medicine will already be useless to solve