one of the things that we discuss is the use of a u.v. meter this is a u.v. meter and the way that the u.v. meter works is that there is a photo electric cell here at the top of the meter and all you do is shine that photo electric cell at a light source for example the sunlight coming through this window. as you can see that u.v. meter is registering numbers and for many x.p. patients this. level of u.v. is too much and will be causing damage. and if we step into the full sun you'll see that light meter is now registering in the thousand this amount of u.v. is enough to cause significant amounts of damage to people with x.p. for even a short amount of time being outside and this amounted to. no more like a few seconds. one. theory for any . oh you. well i. experience a genetic disease in the united states and europe expiate is about one in a million in other parts of the world it's much more common for instance in japan it's one in twenty thousand and we did some studies that show most of the patients with x.p. plan have the same patient of the same great com

one of the things that we discuss is the use of a u.v. meter this is a u.v. meter and the meter works is that there is a photo electric cell here at the top of the meter and all you do is shine out photoelectric cell at a light source for example the sunlight coming through this window. as you can see that. numbers and. this. is too much. and if we step into. this amount of enough to cause significant amounts of damage to people with. for even a short amount of time being outside in this amounted to. no more like a few seconds. one two three four any . how do you. or. i experience a genetic disease in the united states in europe and experience about one in a million in other parts of the world it's much more common for instance in japan it's one in twenty thousand and we did some studies that show most of the patients with x.p. plan have the same patient of the same predicament d.n.a. and we call that a founder mutation and we were able to do studies of the d.n.a. and show that this founder really taishan one hundred generations ago in japan which is approxima