. >> doctors think vahad's son has a rare degenera tiff disease called batten syndrome.icult to diagnose. from the first seizure he suffered it took doctors another five years to identify it. >> when he first started having his seizures from that point on he started regressing and the doctors couldn't find out like what was wrong with him. they kept on treating him for seizures and regardless of what medication they gave him it would come back to where he would have more and more seizures. >> the batten diagnosis was a tremendous blow to this family because the disease is fatal. so when fajad found areport discussing charlotte's web, he jumped in the car. >> i kept calling the number because it was a number we needed to call. >> they joined a large number of families in order to get treatment under colorado's medical marijuana laws. they are being called weed refugees. >> the charlotte's web plant qualifies for him. we are growing it in colorado and labeled as marijuana. it is a controlled substance. we can't ship it to a family no matter how much people call and beg and