verena romero says the speed of diagnosis often depends on the medical team and the persistence of the parents. a diagnosis is crucial because it allows parents to build a support network and manage symptoms more effectively. shielding parents from a diagnosis doesn't make sense even if it takes time for the disease to become symptomatic. colma, the trauma isn't habitable, no matter when i find out about the diagnosis, whether it's at birth or 30 years old. it won't change the reality. the disability is there and it won't go away. getting sick. the specialist and title back in mannheim have chosen to focus on a clearly defined set of criteria is as we understand them, i don't difficulty personally believe it's best to proceed step by step on introducing as you know, mix screening program for newborns would be a major step for our health care system, it is on types this team on file. so believe we have the right to know if i should be fully the right not to know certain things including genetic information, need to say in from much to on the seat. the researchers are committed to uphold