lord flat victor melnik svetlana zakharova evgeny matveev ntv television company novosibirsk region eight-year-old from the moscow region is looking forward to our help today at girls have a rare genetic disease, for which there is no treatment yet and she is now under observation in a hospice, but the girl can live at home among her relatives, only for this the family needs to buy medical equipment, in particular a ventilator, the price of moving is almost 2 million rubles. alexander kakaevich about how to help. after the birth of zemfira , she grew and developed like all her peers up to 2 years old, a rare genetic disease did not manifest itself normally, she developed support, but she had words after. after two years, everything was already gradually, on the contrary, it began to worsen and stopped walking, stopped sitting after a genetic blood test, it became clear that zemfira had a gallervorden spatz disease. it arises due to gene mutation and is extremely rare according to statistics of 1.3 cases per million people, and the birthday of the deterioration was breathing this year in september