that is the to riff the potter family from westhampton, new jersey. >> hello. are you indiana. >> good. >> when jennifer and chad potter had chad jr. he was healthy. at just a few months old, the potters noticed some droopiness in chad's eyes. the diagnosis, a rare disease. >> oh. thanks for the help. >> devastating. it really is. it is bloundness. is hearing impairment. then is failure of so many organs. it affects everything, the liver, the pulmonary fops, the kidneys. >> the syndrome a disorder that affects part of every single cell in the human body. now just mons after the second son was born, they saw it t. that same clicker in maddq's eyes. >> it was couple of months in. i will never forget it. we were in the playroom. they called know come running in. >> that was telltale. >> the halt think baby was all they wanted up the had recessive gene gloat one in the family, that they know of, ever had it. doctors gave them a 25% chance to have a third baby that didn't have syndrome. jr. stated mons before, he could not possibly deal with having a third sick baby