zogby knows a thing or two about determination.es' room. that's where i slept on the floor. >> reporter: she escaped to the united states landing as a post grad in houston, marrying a cardiologist she met during the war and starting a family, and then in 1999, dr. zogby made her big breakthrough discovering among the tens of thousands of genes in our body the exact one that if distorted causes rhett syndrome. >> it was truly like looking for a needle in a haystack. the discovery won her nearly every major science award and international acclaim. but not a cure. >> so beautiful, yes you are. >> reporter: then two years ago dr. zogby met our son, henry. >> like ashley henry also started life normally, but he never learned to walk or talk. my wife mary and i work hard with physio and occupational therapy seven to eight times a week. henry works hard, too, and has brain scans to check for seizures. but there may be light at the end of this dark tunnel. dr. zogby believes henry could hold the key she's been looking for because his genet