bassuk. the chair will not recognize for five and. >> chairman guthrie, ranking member eshoo chair rodgers ranking member pelota members of the committee. i'm an counsel him and of the the program on regulations or pdx and law at harvard med. thank you for inviting me to this specially a disease day about various proposals covering the care of patients with rare diseases. i want to highlight a few bills being debated and how they do and done i can help such patients. they cure, the orphan cures act and many accident inflation reduction act which created a novel pathway for drug price negotiation by medicare bring in on what all of the goods and services medicare covers. negotiation of prescription drug prices is important because rare disease patients like all patients pay far more for brand-name drugs in u.s. been comparable countries. the ira's designed to help medicare reach a fair price every flex the drugs clinical values. covers drugs with two wanted none darcy and medicare sales had be