. >> ♪ a little bit longer, hey >> musician nick jonas, american idol david archuleta, and teen dreamustin bieber -- they're just some of the celebs who support the children's miracle network hospitals. but 13-year-old alena, and millions of kids like her, are the real stars of the charity. alena gets a special present delivered to her house once a week. it's not clothes, jewelry, or games. alena's gift is medicine that helps keep her alive. >> so i have a rare genetic disorder called maroteaux-lamy, or also known as mps vi, and i take an enzyme replacement once a week to help me live and grow. it's my naglazyme. >> she has to go through a long procedure called an infusion, that pumps the medicine into her veins. >> it's 4 hours and 10 minutes on a pump. oh, she's beyond brave. she's very brave. and it's because she knows the importance of getting her medicine. so she knows she has to do it. >> health professionals like pearl are able to help kids like alena deal with their medical conditions, in part thanks to donations to children's miracle network hospitals. >> well, i think it's g