her parents recently found out that she has a rare genetic disease called san felipeio syndrome. it is basically a degenerative condition. she may eventually lose her ability to heart, to heart, but there is some hope. thanks to clinical research in ohio, a treatment that was being tested on mice is curing the syndrome. >> and human clinical trials will continue on december 2014. >> the government shutdown has also shut down the research for this condition. to tell us how the shutdown has impacted eliza and her family, we have her and her parents, and her little brother via skype "right this minute." explain what you've been going through as the shutdown has been making headlines? >> they tend to move pretty sri sloe getting these things approved. the last thing we need is a shutdown that would delay the steps to get this approved. she can go from like you see her today to not speaking. >> when did you become aware this shutdown might impact your daughter's health? >> we started realizing this until it happened. we thought it wasn't going to happen. now it has happened and here w