. >> elizabeth dudek runs a state agency overseeing medically fragtile children like marie frerie. dudeck declined to sit down with us citing pending litigation. >> she insisted parents could decide whether their children could be cared for at home? >> it is the parent or guardian who authorizes the location of service delivery, and it is our goal to assure that children receive the medically necessary services that they need in the most home-like setting. >> i should be able to have my daughter at home with me, and it's -- it's that simple. >> sue root and other parents we spoke to say they have had to fight the state every step of home. >> mommy's here i was trying to get him to wake up. >> sue root's daughter, amy is quadra mreemingic and suffers from life-threatening seizures that predict unpredictably, sometimes as many as 50 in a day. they require immediate medical attention. amy also breathes through a tube in her throat, an airway that needs to be monitored at all times because it can become clogged, cutting off her supply of oxygen. >> she can't walk. she can't talk. she c