>>>s the luke mcmahon, he's 15 years old and this is the first song he's written. ♪ when you smile therld lights up and troubles fade away ♪ ♪ i wait a while to see that beautiful face ♪ >> the name of the song is "i won't let go." it's a beautiful song. and he wrote it for his friend you see sitting right there. that friend is blair chaffin. he's known blair since they were in preschool. and he wrote this friend in helps of helping her. blair has a syndrome. and on "right this minute" we first learned about this from eliza o'neal's family that discovered she had this disease and there's no cure. they started the organization. and under their banner, luke is trying to raise money to help find a cure to help his friend blair. ♪ i promise you today that i'll be there by your side ♪ >> this is a progressive disease. children will lose their ability to walk and talk. and they're not expected to live out of their teens. but they are hoping with the money they raise they can eventually get a cure. >> is there a goal they are hoping to hit as far as money raised? >> they have a gofundme page.