is a very rare disorder it's a metabolic disorder so it really affects a patient's laces soames or their ability to kind of break down you know things in their bodies so they lack of enzymes to properly break the confounds they get stored in in a patient's you know their joints and their their corneas and it's just everywhere basically and so. are the executive director started the foundation over a decade ago when his son isaac was it was diagnosed with m.p.s. type six and we've just been focused on fund fund raising so that we can support research projects that look to find curative solutions and support patients who are needed and have access to treatment and that's just kind of grown from maris we now work with patients with all those different sorts of rare disorders primarily it's what do you do well your mission statement posted on your website uses the word innovative yet your organization opposes this right to try why. yeah i know it sounds antithetical that a patient advocacy organization like ours would oppose right to try. and i think is us want to make it very clear that we

turn soames newbies and then unexpected things happen. to see them. and so they hand their work over to the wait. time will tell what they make of it. to protect the ocean and also the rest of our planet sustainability is becoming more and more popular in a day throwaway society we have to change our way of living among many other things tons of clothes end up in the garbage or on the street here and then you can find boxes labeled with to give away a paradise for on a floppy and have enough pop the two russians have been living in the german capital for years now and they have a pretty successful instagram account where they present this kind of clothes or do you think they look like savvy r.c. let's find out. floody poses for a post on the instagram account she runs with a friend kareena perhaps you could be forgiven for mistaking the outfit for a carefully curated boutique fight but in fact the opposite is the case the entire ensemble was found on the street. if she weren't on the shoes were found on sunday in the quite back district so i picked up

actually studied in a scientific way and so in that sense mass traumatise ation through degradation and soam or something like that that we see with a lot of these you know really disgusting modern horror films this kind of stuff that was actually a study. in in such a fashion that it could be used to to socially engineer there's a propaganda level there's also the traumatized nation love which i think happens that i don't lower deeper subconscious level through the degradation that we see a lot of these movies the you know the really dark stuff at times and what that does is is basically puts proposed to go into a catatonic state and that's done on purpose as a set with the studies that were done into his cut films because when you're in it in a kind of. jilted kind of tonic state you're actually much more suggestible. sort of thing wrong i don't really just don't hold. me. up the same way out. become active. and engaged because of the trail. when so many find themselves worlds apart. just to look for common ground. seventy four design submissions. seven thousand pilings. to join judges. an

gotten away somewhere something like sixteen soames subway stops it walk a fine out of it that was working that journey alone took me a minute an additional two hours in elevator performance disability advocates have had to resort to protests like this and lawsuits just to try to get the public transit authority to comply with an existing law that requires stations be made obsessive will whenever they undergo major renovations just as they sued to win an agreement to make fifty percent of new york's yellow taxis handicapped accessible by two thousand and twenty but then over showed up and were allowed to operate without any regulation so our agreement is at risk the amount of accessibility with sixty thousand inaccessible vehicles added to the city streets. is doing is it's just not what it should be lack of access to transportation advocates say is one reason less than thirty percent of disabled people in new york city work valerie is one of them and a plaintiff in one of several lawsuits against hoover demanding they make more of their cars accessible i am a tax there i go to work i have

gotten away somewhere something like sixteen soames subway stops it walk a fine elevator that was working that journey alone took me a minute an additional two hours in elevator performance disability advocates have had to resort to protests like this and lawsuits just to try to get the public transit authority to comply with an existing law that requires stations be made obsessive will whenever they undergo major renovations just as they sued to win an agreement to make fifty percent of new york's yellow taxis handicapped accessible by two thousand and twenty but then over showed up and were allowed to operate without any regulation so our agreement is at risk the amount of accessibility with sixty thousand inaccessible vehicles added to the city streets. it's doing it's just not what it should be a lack of access to transportation advocates say is one reason less than thirty percent of disabled people in new york city work valerie is one of them and a plaintiff in one of several lawsuits against hoover demanding they make more of their cars accessible i am a tax where i go to work i hav