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Sep 6, 2019
09/19
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KTVU
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we have live team coverage of the vertex verdicts.eak down the vertex as well. >> there were gasps throughout the gallery from anguished family members when the judge declared a mistrial for derick almena and they were very stunned for the acquitl
we have live team coverage of the vertex verdicts.eak down the vertex as well. >> there were gasps throughout the gallery from anguished family members when the judge declared a mistrial for derick almena and they were very stunned for the acquitl
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66
Sep 22, 2019
09/19
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BBCNEWS
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aidan's dad rob discovered vertex, which makes our orkambi had failed to patent it in argentina.rsion — lu caftor. it costs £24,000 for a year's supply. it was a eureka moment. it gave us all hope. the government's been in negotiations for nearly four years now with the pharmaceutical company. they do not appear to be making any progress, so we've got to do something radical. and that something radical is a buyer's club. rob has taken a group of parents and people with cystic fibrosis to argentina to buy the cheaper version of the medicine. so there you see it — a new day dawning. flying over brazil at the moment. it isa it is a huge financial stretch to even afford a three month supply for pa rents even afford a three month supply for parents like paul whose sonjoseph also has cystic fibrosis. any car nearly there and getting increasingly excited. see you any monitor with the box, i hope. increasingly excited. see you any monitorwith the box, i hope. —— see any minute. that was not very straightforward and easy, but we got it. campaigners and admirers clubs are not a long—term s
aidan's dad rob discovered vertex, which makes our orkambi had failed to patent it in argentina.rsion — lu caftor. it costs £24,000 for a year's supply. it was a eureka moment. it gave us all hope. the government's been in negotiations for nearly four years now with the pharmaceutical company. they do not appear to be making any progress, so we've got to do something radical. and that something radical is a buyer's club. rob has taken a group of parents and people with cystic fibrosis to...
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117
Sep 13, 2019
09/19
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BBCNEWS
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eye 117
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vertex is the company that makes the...? them... vertex is the company that makes the. . . ?nment? we are hoping, the welsh government? we are hoping, the rules are different, we are separate. i know you are separate but i suppose i am trying to figure out the level of acceptance or requirement for that drug to be made available? that is the stage that we are at now, as to whether we can do the same deal that scotland have done, whether the same data can be used. that has been a huge injection of money? it is an expensive drug, but cystic fibrosis is an expensive condition, when you take into account lung transplants, the nebuliser, the physiotherapy, everything that goes into the daily regime, it is an expensive condition anyway. to put this into perspective, earlier this year, vertex, the manufacturer, refused a 500 and the impounds offer over five yea rs 500 and the impounds offer over five years from nhs england, which nhs england said was the largest commitment ever made. —— a £500 million offer. i know you are wales, not england, but how do you feel about the drug compa
vertex is the company that makes the...? them... vertex is the company that makes the. . . ?nment? we are hoping, the welsh government? we are hoping, the rules are different, we are separate. i know you are separate but i suppose i am trying to figure out the level of acceptance or requirement for that drug to be made available? that is the stage that we are at now, as to whether we can do the same deal that scotland have done, whether the same data can be used. that has been a huge injection...
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70
Sep 6, 2019
09/19
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KTVU
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we have live team coverage of the vertex verdicts. michael cardoza is here to break down the vertex as well. >> there were gasps throughout the gallery from anguished family members when the judge declared a mistrial for derick almena and they were very stunned for the acquittal of max harris. many family members clearly upset by what happened. we spoke to family members of two victims who died and here's what they had to say.>> it's just disbelief, i'm in shock. i don't know what else to say. we were hoping for justice. we did not get justice. >> personally, i feel that it's because the city has so much to do with it, they couldn't just find these two people guilty. >> imad, i'm just upset, my son and his girlfriend died, and it's just in vain? i've been here almost every day for over five months. for the jury to come back with this? it's just upsetting. there is no other word for me to say. i'm just upset right now.>> the key question is will the alameda county va retry derick almena or decide not to retry him. the key question here
we have live team coverage of the vertex verdicts. michael cardoza is here to break down the vertex as well. >> there were gasps throughout the gallery from anguished family members when the judge declared a mistrial for derick almena and they were very stunned for the acquittal of max harris. many family members clearly upset by what happened. we spoke to family members of two victims who died and here's what they had to say.>> it's just disbelief, i'm in shock. i don't know what...
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46
Sep 22, 2019
09/19
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BBCNEWS
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eye 46
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aiden‘s dad, rob, discovered vertex which makes or can be aiden‘s dad, rob, discovered vertex which makes£24,000 for a year supply. it was a eureka moment, gave us all hope, the government has been in negotiations for nearly four years now with the pharmaceutical company, they don't appear to be making any progress we've got to be radical. and that something radical is a buyers club. rob is taking a group of parents and people with cystic fibrosis to argentina to buy the cheaper version of medicine. so you see a new day dawning, flying over brazil at the moment. it is a huge financial stretch to even for three months supply applied for parents like paul, whose sonjoseph also has cf. in the car, nearly there and getting increasingly excited. see you in a minute with the box, i hope. that was not very straightforward or easy, but we got it. campaigners say buyers clubs are not a long—term solution and government action is needed. we asked for a text for an interview, it declined, but gave us a statement. it says it remains in talks with nhs england and the price of its medicines reflects th
aiden‘s dad, rob, discovered vertex which makes or can be aiden‘s dad, rob, discovered vertex which makes£24,000 for a year supply. it was a eureka moment, gave us all hope, the government has been in negotiations for nearly four years now with the pharmaceutical company, they don't appear to be making any progress we've got to be radical. and that something radical is a buyers club. rob is taking a group of parents and people with cystic fibrosis to argentina to buy the cheaper version of...
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40
Sep 22, 2019
09/19
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BBCNEWS
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eye 40
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we ask vertex for an interview, it declined and gave us a statement. for you in 11 minutes. now it‘s time for the travel show with carmen roberts. this week on the travel show: i take to the sky here injapan to check out one of the country‘s latest world heritage sites. and alex goes on board a unique tall ship that‘s been adapted so everyone can be part of the crew. they‘re so close! we start this week in osaka. a modern city totally rebuilt after the devastation of the second world war. but among the street crossings and skyscrapers, you can still find artefacts from its past. you mightjust not be able to spot them from the ground. made it to the top. it‘s a little bit of a view, it‘s not bad, a lot of trees here. not really that much to see. to get the best view of these historic wonders, you really have to take to the sky. taking off... let‘s go. dotted across the city, there are nearly 50 grassy hills, some of them built in a distinctive keyhole shape. the japanese call them kofun, burial mounds built over 1,500 years ago. these man—made structure
we ask vertex for an interview, it declined and gave us a statement. for you in 11 minutes. now it‘s time for the travel show with carmen roberts. this week on the travel show: i take to the sky here injapan to check out one of the country‘s latest world heritage sites. and alex goes on board a unique tall ship that‘s been adapted so everyone can be part of the crew. they‘re so close! we start this week in osaka. a modern city totally rebuilt after the devastation of the second world...
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Sep 22, 2019
09/19
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BBCNEWS
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eye 67
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we asked vertex for an interview. it declined, but gave us a statement.velopment. a cheshire woman whose two sons have a rare form of epilepsy is calling on the government to intervene after doctors at manchester children's hospital refused to prescribe them medicinal cannabis. angela norton says she is being forced to import the drugs from the netherlands. the trust say their teams are continuing to offer support to the family to ensure they receive the most appropriate treatment jacey normand reports. daily life for the norton family is full of challenges. and getting sons reims and cayman ready for school is just one of them for single mum angela. cayman hasn't slept for two days. last night was eventful — shouting, screaming, banging. reims, he slept, but he had two seizures this morning — quite significant seizures, so that's why he's a little bit worse for wear at the minute. yeah. good boy. 12—year—old cayman and his older brother reims, who is 19, have a rare form of epilepsy which causes multiple seizures every day. reims, look. both boys have be
we asked vertex for an interview. it declined, but gave us a statement.velopment. a cheshire woman whose two sons have a rare form of epilepsy is calling on the government to intervene after doctors at manchester children's hospital refused to prescribe them medicinal cannabis. angela norton says she is being forced to import the drugs from the netherlands. the trust say their teams are continuing to offer support to the family to ensure they receive the most appropriate treatment jacey normand...
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are actual often fall turn this into a kind of i should scripts to lee's are not legally binding vertex will know if you they are preliminary judgments that we are appealing again when's he was and then also you have to distinguish between these court proceedings and the licensing procedure that what's a which is an independent process year we're not going to rely on the verdicts of juries which as we know can be very emotional and skillfully manipulated done zit him once you and i construed ridden sick a she could food to that's why we are appealing and and we know will be proven right by the scientific data in thought and chill view via mine an old to exits baier is betting on winning the next round but the attorneys for us plaintiffs expect further court rulings on their clients favor this is not the and of this litigation this is the beginning there are tens of thousands of people out there probably 203040000 people and i have continuously told day or in monsanto or comment after them we are not slowing down this is the beginning farm workers landscapers and how moaners personal inj
are actual often fall turn this into a kind of i should scripts to lee's are not legally binding vertex will know if you they are preliminary judgments that we are appealing again when's he was and then also you have to distinguish between these court proceedings and the licensing procedure that what's a which is an independent process year we're not going to rely on the verdicts of juries which as we know can be very emotional and skillfully manipulated done zit him once you and i construed...
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103
Sep 12, 2019
09/19
by
FOXNEWSW
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eye 103
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ladies and gentlemen, are those the vertex of the jury? you may be seated.charged from your services. >> shepard: there you go. again, we laid out the case a few minutes ago and bob bianchi who has followed it closely, predict this was how it would go down. he looked at her quivering, knowing the background you gave us and that we read here, there's no happy ending here. >> there isn't but based on the evidence in the case, this is the right verdict. they don't know the cause of death, the statement. look at her on tv. this is the way she was giving her interview. av the statement is right. it wasn't enough to prove to 12 people beyond a reasonable doubt and may i add the defense team did an amazing job of putting expert witnesses, one of whom is the forensic pathologist in mississippi who works 99% for prosecutors. you could not make a determination on a case like this. for confession, experts talk about the reid technique. as far as the corpse was concerned, it was always my opinion after especially foreign half hours, it you are right on the money when yo
ladies and gentlemen, are those the vertex of the jury? you may be seated.charged from your services. >> shepard: there you go. again, we laid out the case a few minutes ago and bob bianchi who has followed it closely, predict this was how it would go down. he looked at her quivering, knowing the background you gave us and that we read here, there's no happy ending here. >> there isn't but based on the evidence in the case, this is the right verdict. they don't know the cause of...
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Sep 12, 2019
09/19
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BBCNEWS
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eye 30
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them for at least five years for those who'd benefit, after striking a deal with the manufacturer, vertexdrugs were too expensive. the cost regulator nice covers england, and is closely followed in wales and northern ireland. health authorities here say they have to follow the advice of clinical experts in terms of what's cost—effective for the nhs. they say they want to get back into talks with the manufacturer, even though recent negotiations stalled. whatever happens in the weeks ahead will be closely watched and scrutinised by patients and campaigners. for the rest of the uk, the cystic fibrosis trust is calling on decision makers to see the announcement today in scotland as proof that deals can be made between the nhs and the drug company, and to see that as an example and work together as an absolute matter of urgency. urgency is what ayda's family are calling for. they live in carlisle and might consider moving to scotland to get her the drugs. heartbreaking, really, to know that only five minutes down the motorway that this drug could be available to her, or is available to her no
them for at least five years for those who'd benefit, after striking a deal with the manufacturer, vertexdrugs were too expensive. the cost regulator nice covers england, and is closely followed in wales and northern ireland. health authorities here say they have to follow the advice of clinical experts in terms of what's cost—effective for the nhs. they say they want to get back into talks with the manufacturer, even though recent negotiations stalled. whatever happens in the weeks ahead...
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Sep 12, 2019
09/19
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BBCNEWS
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eye 88
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a five—year agreement has been reached between the scottish government and pharmaceutical company vertexfatal lung damage, affecting more than 10,000 people in the uk — around 900 of them in scotland. one of the drugs given the go—ahead today, orkambe, reportedly costs £100,000 per patient, per year. last month the body which approves drugs for use by the nhs in scotland rejected the treatments, saying... the "cost in relation to its health benefits was not sufficient". but today's news means around 400 eligible patients in scotland will be given access to these drugs — after the scottish government secured what it called a "confidential discount" from the manufacturer. joining me now is liz brennan. herfour—year—old daughter, annabelle is living with cystic fibrosis and their family have been campaigning for the availability of orkambi on the nhs in england. shejoins me now from bristol. thanks very much for being with us. so, just give us an idea of what difference that drug would it make to your daughter, to annabel, if it we re to your daughter, to annabel, if it were available, beca
a five—year agreement has been reached between the scottish government and pharmaceutical company vertexfatal lung damage, affecting more than 10,000 people in the uk — around 900 of them in scotland. one of the drugs given the go—ahead today, orkambe, reportedly costs £100,000 per patient, per year. last month the body which approves drugs for use by the nhs in scotland rejected the treatments, saying... the "cost in relation to its health benefits was not sufficient". but...
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Sep 20, 2019
09/19
by
CNBC
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eye 151
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. >> you're just down the street from vertex pharmaceuticals, this new area called the boston seaportss town is amazon's joint venture haven. >> yes. >> you announced about the same time a year ago and yet they've been under raps. they haven't apparently launched anything new you're set to launch a new virtual primary care service for small health groups. talk about how being here and having this kind of digital hub helps you do that more quickly >> a few things. first, we do develop products in an agile fashion so what you see and even in this office you'll see us bring customers in, interview them and then our product design goes and designs them and then comes back and talks to the customer. so we have this very agile orientation to get products out as quickly as possible we're not going to be perfect, but the customers are helping us develop this first it's just how we design products and go to market. the second thing is is the ability to do that in a way that we have great talent what we've been able to amass over the last year and being able to develop this office is some reall
. >> you're just down the street from vertex pharmaceuticals, this new area called the boston seaportss town is amazon's joint venture haven. >> yes. >> you announced about the same time a year ago and yet they've been under raps. they haven't apparently launched anything new you're set to launch a new virtual primary care service for small health groups. talk about how being here and having this kind of digital hub helps you do that more quickly >> a few things. first,...