until he fessed up that he has cystic fibrosis. i had no idea. he'd had, he'd been diagnosed since he was a child. he had done well through most of school. when he got to medical school, though, in his last year he ended up spending about a month in the hospital during the, his internship year he spent six weeks in the hospital with pulmonary exacerbations from cf. this was now his second year, and he'd already spent a month more in the hospital. and he'd become all too acutely aware that the average survival for a patient with cf is 33 years. so our conversation shifted. and we began to talk about a troubling thing but also a fascinating question which was what can we do to save his life? what was, what are, what is our best bet for helping mark live? if you ask most of us, we would say to fund research on discovery, but this is where we should put our money. we have to find a cure. and, in fact, that's where the cystic fibrosis foundation has put its effort and its resources over the years, it's where the nih has put it money, it's where the u.

. >> reporter: at age 2, lindsey was diagnosed with cystic fibrosis, a disease that causes music to buildt physical their people every day. started with my parents clapping on me every day. >> reporter: little realerally. >> literally here and then on my back. my lung capacity by the time i was 18, 19 years old was telling me i needed a lung transplant. >> she joined the organ donor list and waited and waited. while things got rapid leap worse. >> i couldn't do much of anything. i could really finally tell that i was sick. i mean i still wouldn't admit it. i wouldn't say, like i didn't feel well. i just -- i couldn't do things. >> after seven months on the waiting list, she was deteriorating fast. >> patients who come to see me are really sick. and they're going to die if i've can't help them. >> that was lindsey's case. the doctor is her surgeon. >> imagine if i took 80% of your lung away. how you would function. lindsey will die if she doesn't get her lung soon. her mother knew without the transplant, lindsey wouldn't seep another birthday. >> i used to go to her apartment every day, wh

>> we look at evething from are you a carrieror cystic fibrosis or breast cancer or diabetes. also look at drug response. me people resnd and some do not. a lot of that is based onour dna. >> you founded the company in 2007. you secured more than $100 million in four rounds of funding. >> correct. >> one of your first investors was your husband, google co-founder. yotwo have announced a separation. how volved is he? >> he's super supportive. we're grt friends. >> this resus of his own test triggered his? >> he learned he h a carrier for parkinsons. we do a lot with michael. fox. we're the world's largest parkinson's communy and how cawe be part of makin a cu. >> as health care and technology are finding more opportunities workintogether, this marriage is so citing. should we be concerned about this psonal information getting beyond ourselves, getting in the wrong person's hands? >> i think there's a huge advantage of having a big dat set of health care infoation. myoal is you walk into the doctors office and they cld say you're five years awa from being diabetic based on your

>>e look at everything from are you a carrier for ctic fibrosis or bast cancer or diabetes. we also look at drug response. some people respond and some do not. lot of that is based o your dna. >> you foued the company in 2007. you secured more than $100 million inour roundof fuing. >> correct. one of your first iestors was your husband, gooe co-founder. you two have announced a seration. how invoed is he? >> he's super supportive. we're great iends. >> this results of his own test triggered this? >> he learned he has a carer for parksons. we do a lot with mhael j. fox. we're the world's largest parkinson's mmunity and how can we be part ofaking a cure. >> as health ca and technogy are finding more opportunities working together, this marriage so exciting. should we be concerned aut this persol information getting beyond oselves, tting in the wrong person's hands? >> i think tre's a huge advaage of having a bi data set of healthare information. my goal is you walk into the doctors office and they could say you're five years away from ing diabetic based on your behavior patter

>> we look at everything from are you a carrier for cystic find broes skis fibrosis or breast canceretes. we also look at drug response. some people respond and some do not. a lot of that is based on your dna. >> that's face nating. you founded the company in 2007. you secured more than $100 million in four rounds of funding. >> correct. >> one of your first investors was your husband, google co-founder, sergei brin. you two have announced a separation. how involved is he? >> he's super supportive. we're great friends. >> the results from his own genetic testing -- >> he had a family history of parkinson's. he's got 50/50 odds for parkinson's. we do a lot with michael j. fox. we're the world's largest parkinson's community and how can we best prevent it and being part of the cure. >> as health care and technology are finding more opportunities working together, this marriage is so exciting. should we be concerned about this personal information getting beyond ourselves, getting in the wrong person's hands? >> i think there's a huge advantage of having a big data set of health care in

at age two she was diagnosed with cystic fibrosis. >> my lung capacity by the time i was 18, 19 yearsere they were telling me that i was going to need a lung transplant in two years. >> reporter: her mother knew without the transplant lindsey wouldn't see another birthday. >> i would walk to work crying, knowing that my daughter was dying before my eyes and there wasn't a thing i could do about it. >> reporter: then on the morning of april 4, 2011 -- >> they called. they said they have a potential match. hopefully it's for real. >> we're a go, yep. >> we love you. >> love you, too. i'll be fine. >> reporter: tense moments, but in the end -- >> all good, all good. >> reporter: whose death allowed her to live? >> all i know is he was 18 and a male. >> adrian rodriguez was a charmer, a high school senior, a beloved only son. >> adrian was running to school and he slipped on the subway platform. >> reporter: as the train pulled in, he fell. one mother's loss would save another mother's child. >> all i could think of that day was how lucky we were and how unfortunate she was. we were just

at age 2, lindsey was diagnosed with cystic fibrosis, a genetic disease which causes mucus to build upe lungs. >> my lung capacity by the time i was 18, 19 years old, was to the point where they told me i needed a lung transplant in two years. >> her mother knew without the transplant lindsey wouldn't see another birthday. >> i would walk to work crying knowing my daughter was dying before my eyes and there was not a thing i could do about it. >> reporter: then on the morning of april 4th, 2011 -- [ phone ringing ] >> they called and said they have a potential match. i can't believe it's for real. >> here we go. yep. >> love ya. >> love you too. >> okay. >> reporter: tense moments but in the end -- >> hi. >> hi there. >> all good. all good. >> reporter: but whose death allowed her to live? >> all i knew is he was 18 and he was a male. >> reporter: adrian rodriguez was a real charmer. a high school senior, a beloved only son. >> adrien was running to school. he slipped on the subway platform. >> reporter: as the train pulled in, he fell. one mother's loss would save another mother's chi

>> people are making informed decisions, if you are both carriers for cystic fibrosis, you want to makeyes, our child does are a chance. that would make individuals into better parents. gerri: where does this go next? what is so interesting, have you an unveiling of information have never seen before, maybe you know your parents had diseases, you thought maybe you might get them, this is hard information, where does it go next? >> i think that we'll change healthcare from health care system that reactive to decision to something focused on prevention, like in your case, maybe his stomach problems and i did not know it was a gluton glutonnalle allergy. gerri: one big issue, i know, our viewers, will have ann are you selling my information. >> 23 and me always has perspective of customer. and so we have some customers who are is a coma patient -- sarcoma patients, the best thing for you to do is enable everyone that wants to study sarcoma to get access to the data, we never sell individual data but we do partnership with -- scientists. >> and say we're fining this association, with pain r

she had to have a double lung transplant to survive, born with cystic fibrosis. training camp in florida when she was 8 years old. >> i see in huge man walk in and it was amazing, such a bright light at a dark time. heather summoned up the courage to ask bonds to sign a newspaper clipping and he agreed. >> he signed it for me and, yeah, i've had it ever since and it's such a treasured possession. >> a treasured possession that's now gone. her family wants it back. >> and for someone to just take that is so wrong, like, i wish they walked in her shoes for a day during that time. >> something that personal is never -- can never be replaced, unless i get the actual thing back, nothing can take its place on that wall. >> george kitiyama, "today in the bay." >> and the san diego unified school district superintendent said they didn't mean to offend anybody but they did. >> they are misguided and they need to learn their history and sometimes people don't know their history. this is a start. >> the three are suspended without pay for two days. despite the suspensions,

>> i have a son with cystic fibrosis, i'm a mom of three, i run my own organization, i employ millennials. that's what we're talking about. i'm not going to have social security. i'm not going to have retirement. my employees are worried about their retirement. my husband's not going to have retirement. i'm scared to death what obama care's going to do to america's medical field, the development and the research and advances we had that we're going to become like canada and europe. that's a real fear that i'm afraid of what obama care's going to do, i'm not going to be able to hire two new employees next year because of the increase in insurance cost to my employees. and then i get double taxed. >> i think that you have laid out a case that a lot of people feel like -- is that real? noah? >> it's very real. but you put out some numbers in the last segment. and what you saw was the bottom falling out. why? because the affordable care act has kicked in. and they're being told. they're being told that young invincibles have to sign up for this program. you don't know what's best for you. >>

and being treated for cystic fibrosis at the johns hopkins children's center. he is such a good artist. this is called bringing home the tree. there's a tree in a pickup truck. good job, thomas. it's awesome. there we go. >> this, by the way. madison, is age 11. and the title of her tie is santa go green. >> i like it. great christmas gifts for such a great cause. awesome. >>> still ahead on eyewitness news. >> do you smoke crack cocaine? >> what does that mean? yes, i have smoked crack cocaine. >> reporter: a shocking admission. but he's not backing down. why toronto's mayor won't leave office willingly. >>> grilled again. what health secretary kathleen sebelius is saying about the botched rollout now. >>> i have one, too. it's by thomas griffin. ellicott city. bringing home the trees. we have showers and a cooldown headed our way. i'll have the exclusive first warning five-day forecast. i wish i was made of money. i wish you were too. chances are, you're not made of money. so don't overpay for motorcycle insurance. geico motorcycle. see how much you could sav

cystic fibrosis, one of the most widely genetic disorders, is due to a letter changed in the fluoride ion channel but people thought he just affected its function. in fact, what it affects is the finding of one of the chaperones and how it folds. it never gets folded properly so you never get enough produces so there's less protein in the cell. so all our cells work on the process of dynamic renew. if you can't read the genetic code and possibly make proteins, death results frequently. so even looking at human cells, for example, tumor cells, the half-life of all the cells buried from 45 minutes to a little under 24 hours. each of us shed around 500 million skin cells every day. that dust that's in your house, that's you. and you wonder why you keep getting more dust? he shared the entire outer layer of your skin every two to four weeks. the same with our intestinal cells. the same with our blood cells. they have to die and be replaced everybody. even during normal development of a child, 50% of the cells died during a normal organ develop and. so every aspect of human life that's goi

cystic fibrosis one of the most widely genetic disorders is due to a letter exchange. people thought it just affected the function but in fact, it is the binding and how it folds it is never full the properly so you never get enough produced so there is less protein in the cell. it is all based on dynamic renewal if you cannot read the genetic code and then death results very quickly so even looking at human cells they vary from 45 minutes to a little under 24 hours. each of us shed around 500 million skin cells every day. that dust in your house? that is you and you wonder why you keep getting more dust you shed the entire layer of skin every two or four weeks just like the blood cells that die and passed to be replaced every day. even during normal development of a child 50 percent of the cells die during a normal -- normal working development so every aspect of life of individuals at the cellular level is a constant dynamic. so we have concluded that all cells on the planet are dna driven machines. coming from the linear protein coat it determines their function or

she has a 19-year-old son with cystic fibrosis who has been treated his entire life at boston children's hospital. under the new plan that the exchange is offering in the state of maine. she can no longer take her son to the doctor who is treated him his entire life at children's hospital. so i think we're going find there are far bigger problems with obamacare than just the website. >> we're starting to see, i mean, susan, i know you saw senator feinstein talking about the number of people that called her with similar stories. and she has now joining with senator landrieu and bill clinton from the outside and saying maybe change the law. doing? about the people who are having the insurance canceled. are you going join that effort? >> first of all. we have to make changes going forward. one of the changes is a medical device texas. i would like to see that changed, repealed. because it is essentially a tax on manufacturing. either have a better plan on the exchange or able to keep their own insurance i think one of the problems with making these changes is terrorist general agreement we

she has a 19-year-old son with cystic fibrosis, who has been treated his entire life at boston children's hospital. under the new plan that the exchange is offering in the state of maine, she can no longer take her son to the doctor who has treated him his entire life at children's hospital. going to finde that there are far bigger problems with obamacare than just the website. been someone who has putting forward alternatives, patches him if you will, i wonder what your reaction is to this. >> there are people that are i wasotally opposed, and not there when it was passed. john hoban and i are very good friends, the governor from north dakota. i just think we can do better as a nation than have people who are one illness away from being bankrupt. or person who was born with a defect, or god forbid, they have had a serious ailment, and now because of weeks is to conditions, they are not insurable. there are so many good things that we can all agree on, but people who want to repeal, we cannot even agree on what time of day it is anymore. only thing i have said, when this thing rolled out

she has a 19-year-old son with cystic fibrosis who has been treated his entire life at the boston children's hospital. plan that the exchange is offering in the state of maine, she can no longer take her son to the doctor who has treated him his entire life at children's hospital. i think we are going to find that there are far bigger problems with obamacare than just the website. >> as someone who has been sort of putting forward alternatives them up patches, i wonder what your reaction is today? >> there are people that are totally opposed and want to kill us. to repeal something, i would not do this. at that time, i was going in as chairman of the national governors association and john hobin and i worked together. i think we can do better as a nation in having people facing that they are one illness away from being bankrupt or a person or, god with a defect forbid, they have had a serious illness and now because of pre- existing conditions, they are uninsurable or children could not stay when it was low cost. there are so many good things we can agree on but then people that want to repe

children's hospital that has provided a lifetime of excellent care to her 19-year-old son who has cystic fibrosis. dave eshelman of fall mouth told me he and his wife are facing more than a 90% increase in premiums. having to spend an additional $5,000 a year in health insurance is no small matter to them at a time when they are struggling to start a small business. mr. president, one of the major reasons that i strongly oppose the affordable care act was that there was nothing affordable about it. i predicted it would lead to fewer choices and higher insurance costs for middle-income families and small businesses. congress must work together to address the very real health care concerns of the american people and the budget realities we face. appealing obamacare's poorly crafted and misguided mandates and replacing the law with a fiscally responsible reform bill that contains costs and provides more choices is the best path forward. thank you, mr. president. a senator: mr. president? the presiding officer: the senator from wisconsin. mr. johnson: gina salas, a mother of two girls, a wife and wis

she has a 19-year-old son with cystic fibrosis, who has been treated his entire life at boston's children's hospital. under the new plan that the exchange is offering in the state of maine, she can no longer take her son to the doctor who has treated him his entire life at children's hospital. so, i think we're going to find that there are far bigger problems with obamacare than just the web site. >> we're starting to see -- susan, you know, we saw senator feinstein talking about the number of people that have called her with similar stories, and she is now joining with senator lan drew didn't lan drew and maybe bill clinton from the outside, make you need to change the law to do something about people getting their insurance canceled. are you going to join that effort? >> at the beginning when the law passed i voiced concern about the fact that we were going to have to make changes going forward. for me one of the changes is the medical device tax. i would like to see that changed, repealed, because it is essentially a tax on manufacturing. that being said, whether it is doing what we took

. >> reporte 12-year-old mckenna who has cyst fibrosis was just a few floo away. >> all of thsudden,hoot" over the speakers. >> reporter: her father barricaded t hospital room door. >> we pushed t bed over to the do, and we grabbed the chair, anwe pushed the chair ght in frt of the bed, and then he grabbed the table, and he moved the tae right in here in this area. reporter: he sent h into the bathroom to de. >> the scariest thought at i had while was in the bathroom was that someone is in her and they have a deadly weapon. and there is a chance that he could possibly come up here d harm one of us >> this morning, hendricks is milwaukee county jail having been transrred from the hospital where he d been eated. natalie. >> so frightening there. john, thk you in wanatoga, wisconsin. >>> today, thepecial investigor is in miami to meet withonathan martin. earlier this week, the dolphs' owner postponea meeting with martin so that the league could speak with him first. >>> it was aong shot 109 feet and 9 inches as e harlem globetrotter larry law is claiming the guiess book of world records