i knew lou gehrig. hawkingare of stephen and that was about it.t just isn't something that presents itself on a daily basis to people. charlie: how old when they said to you you had als? jay: i am 8-12 months post diagnosis. i was late 61 when i was diagnosed. , theoctors will tell you disease isn't the easiest thing to diagnose. symptoms often tell you whether you have the disease are not. how do you present complicated issues. after how much diagnosis? jay: a lot of tests, a lot of of tests.ns, a years i went to lots of different doctors. one after another. finally someone said it is time to see a neurologist. i had not been. there was no one who caught in the early stages. charlie: how do you explain that? dr. rothstein: it's pretty common. it takes a year from the first symptoms to get final diagnosis by a specialist. early in the disease the manifestations are so protean and common. hand weakness. there are a lot of reasons why we have hand weakness. keys,e with zippers are or maybe her foot is weak. for a man they made trip on a golf course.

and i was a yankee fan right after lou gehrig died.rned a lot about stamina by knowing about lou gehrig. you know, his constant playing, his constant game attendance. he set a record until the baltimore orioles broke it, the player cal ripken broke it. and i grew up in the era of joe dimaggio and mickey mantle. and when steinbrenner came across, it sort of soured me. and i lost interest pretty much. but i'm still 10 years old when it comes to being a yankee fan. >> all right. ha ha! [applause] why do you think elizabeth warren was not given the position of head of the consumer financial protection bureau? >> because she was too good for the job. my father once said, "the only way you lose your job in government is to do your job." [laughter] >> there you go. [applause] all right. what advice would you give to someone having a child in 2013? >> uh, is there a reason for the year? >> just meaning now. it could be now. >> this is not a nostradamus question. >> no, no. [laughter] don't know. probably not. ha ha! [audience member speaking i

treatments for alzheimer's, multiple sclerosis and other devastating neurological diseases including lou gehrig's and parkinson's. and works to fuel wife giving for future generations. it is surely the epitome of an architect of change. for those that created the series period shriver was an architect of change. with entreprenuership creating programs in issuing reports with the singular goal to a finance women professionally also the leading advocate for families struggling with alzheimer's that is why it is important to her as well. please join me to welcome maria shriver and ann romney [applause] >> let banalities people that came to hear you. >> thank you. thank you for braving the traffic they have chosen to come to listen to you or hillary clinton. [laughter] [cheers and applause] it is wonderful you cannot come to hear a better woman. and she truly is an architect of change i also like to say full disclosure be our friends and have known each other a long time and i am a big admirer of her as a woman, wife, mother, grandmo ther and certainly now as an advocate for people with ms in all neu

if i don't get these medicines, lou gehrig's is 100% fatal. let's put the life boat in the water.ng to jump in. >> i look at steve jobs' case. there's treatment that you know, we have a system today where if you are wealthy enough and have the resources, sometimes you can avail yourself of these things. 99% of americans don't have those resources and of course, frankly, if you're terminally ill, you can have all the resources in the world and you still want to be treated near your home and with your family. that's what compassion daughter think olson, thank you very much for being on the show this morning. that does it for us. msnbc live picks up after a quick break. have a great day. take the zantac it challenge! pill works fast? zantac works in as little as 30 minutes. nexium can take 24 hours. when heartburn strikes, take zantac for faster relief than nexium or your money back. take the zantac it challenge. ♪ ♪ the beautiful sound of customers making the most of their united flight. power, wi-fi, and streaming entertainment. that's... seize the journey friendly. ♪ if legalzoom

with will and ot sclerosis and other devastatingl neurological diseases including parkinson's and lou gehrig's. the center that can be can be as world-renow -grld-renowned science and worke to fuel like giving breakthroughs that will change outcomes for future generations. this remarkable woman truly is c the activity of an architect of change. so who better to talk about howt their she's creating solutionsgn in the changes for ththe worldd that created a serious areaehe shriver.a shriv herself she's an architect of of hange change and she has long championed for women's empowerment, economic entrepreneurship and socialomict justice.soci she has created programs comesha issued reports and produced films all with the goal of womee advancingr women both personally and professionally. she's also one of the leading advocates for families struggling with alzheimer'sthusi disease.t. ladies and gentlemen pleaselib welcome and romney in the area -- maria shriver. [applause] look at all these people whok a came to hear you. ow, >> thank you all for braving the traffic and coming all this way. they had

disease multiple sclerosis and other devastating neurological diseases including parkinson's and lou gehrig's. the center convenes world-renowned scientists and works on life-giving breakthroughs and outcomes for future generations. this remarkable woman truly is the academy of an architect of change. who better to talk to ann about how she's creating solutions and changes in the world than the person who create the serious maria shriver. maria herself as an architect of change preaches long championed economic entrepreneurship and social justice. she has greater programs, issued reports and produced films all with the singular goal of advancing women both personally and professionally. she is also one of the nation's leading advocates for families struggling with alzheimer's disease thus making the ann romney center for neurological diseases personally important to her as well. so let's get to it. ladies and gentlemen please join me in welcoming to the reagan library ann romney and maria shriver. [applause] >> wow, look at all these people came to hear you. >> i know, this is awesome. thank

. >> caregivers who help people struggling with lou gehrig's disease were honored today.is luncheon to thank them. they also thanked the philadelphia please for raising money during its phillies festival. >> as the holiday approaches we here at 6abc are teaming up to help feed our neighbors in need. so join us next wednesday november 18th for a live telethon to benefit philadbundance. volunteers and some special guests will be on the phone taking your donations from 4:00 to 6:30 p.m. our own sarah bloomquist will host and for information you can log onto our web site at 6abc.com. star light star bright, the first star i see tonight i wish i may, i wish i might, have the wish i wish tonight wishes do come true. the lincoln wish list event is on. right now get exceptional offers on the entire lincoln family. for a limited time your choice of mkc, mkz gas or hybrid for $369 a month with zero due at signing. >> an update on that breaking news we have for you out of paris france. there were at least three explosions and two shootings in and around paris. french police have jus

i knew lou gehrig, i listened to the speech. i was aware of stephen hawking and his condition generally. and that was about it. i just,s just-- it isn't something that presents itself on a daily basis to people. >> rose: and how were you when the doctor said to you you have als. >> i'm about 18 to 24 months post diagnosis. so i will be 63 next week. so 61, late 61 when i was diagnosed. but even that is a challenge. because the docs will tell you that the i did cease isn't the easiest thing to diagnose. the symptoms often tell you whether you have the disease or not. so when you present, how you present, complicated issues. but i'm about 18 to 24 months into it. >> rose: but told you after how much diagnosis? ness. >> oh, a lot, a lot of tests, a lot of examinations, probably about a year's worth. i thought i had a bad back. and had been to lots of different doctors and gone for lots of different treatments. one after another and then finally someone said i think it's time to see a neurologist. and that was sort of the breakthrou

the site is consistent of larger unutilized parking lot in single ownership of 4 acres that is lou gehrig's disease u allowing us to master plan for a site of this size and it allows greater flexibility in the arrangement of buildings and allows us to amazed open space in quantities more useful and pub assessable secondly, we believe that is compatible with the surrounding building form the emergency hotel is across the street it is nearly 4 hundred feet in its form and it actually allows us to amazed the buildings near 15th it is aligned with building of compatible size and height and third close to transit a block if the station for bart and muni and the central subway station as well of the foyer stations on market street is not one that is having capacity like the capacity for further growth and fourthly this site is a contribution on the edge of the western edge of downtown and designated most of site designated as c-3 by represents the western ends and the arrangement of buildings on the sightly and the location of open space and the adjacency of lower historic building to the west he

advisory council we'll be helping to convene the local accountability plan task force and we're lou gehrig also collaborating with the partners to engagement plan last week our subcommittee met to begin to did you how to approach the community engagement in the initial conversation we were looking cpr how to broadened our voice and increase those existing such a student voice and court and county schools and staff we're looking at how to create a more systemic message of engagement to throw 9 school sites and overall how to make that a yearlong process we're hoping to make has to do with headway this greater we'll report on the plans as they develop throughout the process the next silence all electronic devices on monday next monday 16 on the 3rd floor from 5:00 p.m. to 5:30 p.m. on a side note thank you to the superintendent for step up to the plate an invitation to go and participate at the california collaborative on the reform in sacramento this thursday and friday into the office of community engagement to share about your experience on the development of our el cap and learning had y

the site is consistent of larger unutilized parking lot in single ownership of 4 acres that is lou gehrig's disease u allowing us to master plan for a site of this size and it allows greater flexibility in the arrangement of buildings and allows us to amazed open space in quantities more useful and pub assessable secondly, we believe that is compatible with the surrounding building form the emergency hotel is across the street it is nearly 4 hundred feet in its form and it actually allows us to amazed the buildings near 15th it is aligned with building of compatible size and height and third close to transit a block if the station for bart and muni and the central subway station as well of the foyer stations on market street is not one that is having capacity like the capacity for further growth and fourthly this site is a contribution on the edge of the western edge of downtown and designated most of site designated as c-3 by represents the western ends and the arrangement of buildings on the sightly and the location of open space and the adjacency of lower historic building to the west he

the site is consistent of larger unutilized parking lot in single ownership of 4 acres that is lou gehrig's disease u allowing us to master plan for a site of this size and it allows greater flexibility in the arrangement of buildings and allows us to amazed open space in quantities more useful and pub assessable secondly, we believe that is compatible with the surrounding building form the emergency hotel is across the street it is nearly 4 hundred feet in its form and it actually allows us to amazed the buildings near 15th it is aligned with building of compatible size and height and third close to transit a block if the station for bart and muni and the central subway station as well of the foyer stations on market street is not one that is having capacity like the capacity for further growth and fourthly this site is a contribution on the edge of the western edge of downtown and designated most of site designated as c-3 by represents the western ends and the arrangement of buildings on the sightly and the location of open space and the adjacency of lower historic building to the west he

the site is consistent of larger unutilized parking lot in single ownership of 4 acres that is lou gehrig's disease u allowing us to master plan for a site of this size and it allows greater flexibility in the arrangement of buildings and allows us to amazed open space in quantities more useful and pub assessable secondly, we believe that is compatible with the surrounding building form the emergency hotel is across the street it is nearly 4 hundred feet in its form and it actually allows us to amazed the buildings near 15th it is aligned with building of compatible size and height and third close to transit a block if the station for bart and muni and the central subway station as well of the foyer stations on market street is not one that is having capacity like the capacity for further growth and fourthly this site is a contribution on the edge of the western edge of downtown and designated most of site designated as c-3 by represents the western ends and the arrangement of buildings on the sightly and the location of open space and the adjacency of lower historic building to the west he

advisory council we'll be helping to convene the local accountability plan task force and we're lou gehrig also collaborating with the partners to engagement plan last week our subcommittee met to begin to did you how to approach the community engagement in the initial conversation we were looking cpr how to broadened our voice and increase those existing such a student voice and court and county schools and staff we're looking at how to create a more systemic message of engagement to throw 9 school sites and overall how to make that a yearlong process we're hoping to make has to do with headway this greater we'll report on the plans as they develop throughout the process the next silence all electronic devices on monday next monday 16 on the 3rd floor from 5:00 p.m. to 5:30 p.m. on a side note thank you to the superintendent for step up to the plate an invitation to go and participate at the california collaborative on the reform in sacramento this thursday and friday into the office of community engagement to share about your experience on the development of our el cap and learning had y