you don't understand what lupus is or how it affects her. >> lupus can be painful and extremely hardit was excruciating for michael to see his mom struggle. >> we have a strong connection. even though she is sick she has a smile on her face. she has extreme highs and extreme lows with lupus. one day she is all right and fine and the next she feels like she has the flu. there is not that much information on it and no one has real answers. that is the hard part to sit back and watch. all you have to offer is your words or a hug or a feeling. and to me, that not enough. >> as a child, michael spent hours in waiting rooms and doctors offices while she searched for a cure. that cure never came. but a chance meeting changed everything. >> one day my mom wept to a doctor's appointment and i'm waiting for her to come out and the woman said you should get into modeling. without my mother, i probably won't be acting or in this industry. >> after roles as child actor, michael's career began to soar in his late teens and early 20s. as he grew more famous he never forgot about the sacrifices his

i know you are doing a lot of work on lupus. anne: we are working on lupus with pfizer.e have a number of partnerships that we are doing with pharma companies. lupus and inflammatory bowel disease and parkinson's, we are about to launch a few others. emily: are you going to do human testing yourself here? anne: it will be asked best if -- it will react best if we come to them with a target or a compound with some clinical background. some data about how that is functioning. there is a higher likelihood of success if we can come with that level of information and move that forward. emily: you would do human testing here? anne: we would start doing some of our own clinical research for sure. emily: there is ancestry, they do some similar things. they have a partnership with calico. do you see google and calico as competition? anne: everything here is based on genetics and in gauging the consumer and making interesting, engaging products on them. calico is focused on anti-aging. i wish these companies well. i think it will expand the entire industry. i want to translate thi

know lupus. lupus almost took my life. no, know, know lupus, no lupus. goldberg] lupus is one of those things that takes over somebody's body and you don't know anything about it. [woman 2] there's certain things that i can't do, but i still get up every morning and do it. [woman 3] i really felt like.. maybe i might not be able to make it through this. [woman 4] lupus does not discriminate. it can affect men, women, white, black, older, younger. i've had lupus for 10 years. i am 17 years old. i am 11. [whoopi] we've got to find a way .. to get through this. there is something we can do, there is hope. you just have to get involved. i haven't given up. i challenge you to know , know, know lupus. go to lupus dot org slash know. there is hope! >>> we have quite a yarn to end the broadcast, and it's spun by jim axelrod. [ rooster crowing ] >> reporter: on a bucolic farm just outside burlington, vermont, lives a sheep named sweet pea. she really is so sweet. sweet pea's adopted parents, john and jen churchman have a give- and-take relationship with the land.

you don't understand what lupus is or how it affects her. >> lupus can be painful and extremely hardtect. it was excruciating for michael to see his mom struggle. >> we have a strong connection. even though she is sick she has a smile on her face. she has scream highs and extreme lows with lupus. one day she is all right and fine and the next she feels like she has the flu. there is not that much information on it and no one has real answers. that is the hard part to sit back and watch. all you have to offer is your words or a hug or a feeling. and to me, that not enough. >> as a child, michael spent hours in waiting rooms and doctors offices while she searched for a cure. that cure never came. but a chance meeting changed everything. >> one day my mom wept to a doctor's appointment and i'm waiting for her to come out and the woman said you should get into modeling. without my mother, i probably won't be acting or in this industry. >> after roles as child actor, michael's career began to soar in his late teens and early 20s. as he grew more famous he never forgot about the sacrifices

i know you are doing a lot of work on lupus. anne: we are doing lupus with pfizer. a number of partnerships that we are doing with pharma companies. lupus and inflammatory bowel disease and parkinson's, we are about to launch a few others. emily: are you going to do human testing yourself here? anne: what we want to do and ,hat we want to do with pharma it will react best if we come to them with a target or a compound with some clinical background. some data about how that is functioning. there is a higher likelihood of success if we can come with that level of information and move that forward. emily: you would do human testing here? anne: we would start doing some of our own clinical research for sure. emily: there is some competition out there. ancestry.com does something similar. they have a partnership with calico. do you see google and calico as competition? anne: no. everything here is based on genetics and in gauging the consumer and making interesting, engaging products on them. calico is focused on anti-aging. i always wish all these companies well. i thin

and battling both sickle cell and lupus at the very same time.y have that story. 12-year-old briana and rana are as close as they would get maybe even closer. >> when she is sick and crying at 2:00 in the morning. that they are sitting there rubbing their hair. >> that they have a happy thing, but also the sad thing to see her. her hip and shoulder bones are beginning to deteriorate. >> she fights through the pain every day. >> the risks are significant. the worse thing is to ask that. >> but without a match, dad is as close as it would get. if she rejects the bone marrow, they will replace it with some of their own. >> this are times when i'm like oh my gosh i want this to go away. it's like oh wow i get this one chance. >> reporter: they sustain the family. and lots of laughs along the way as it -- that it is no surprise that they would excel in and outside the classroom. >> i do the morning announcement at my school. >> wait, wait, wait. am i talking to my future competition? >> yes. no surprise. >> it's not the stuff that is stopping you. the

of holidays, between josh's 8 years as an active duty marine and health emergencies due to kate's lupus. and after a fire destroyed the vrieswyk's garage this week, they say they're just happy they have a home this holiday... however...they weren't sure how a christmas...the children's gifts were stored in the garage.... (kate wrieswyk) "we've always worked hard to give our kids whatever they need, or even try to give them what they wanted and for us to think that it was all going to be taken away from them ...and they did nothing to deserve that. it was really hard. " when santa and mrs. claus heard what happened from a close friend, who also happens to be the vrieswyk's neighbor. they knew they had to help. they brought all three kids toys, a gift for mom and dad, and gifts for the vrieswyk's neices whose gifts also got destroyed in the fire. (josh vrieswyk) "their eyes just lit up so huge, just gracious that you know they came. a lot of excitement in the kids, and let them know that santa and they're might have been a bad thing that happened to the house and the garage and all of tha

of holidays, between josh's 8 years as an active duty marine and health emergencies due to kate's lupus. and after a fire destroyed the vrieswyk's garage this week, they say they're just happy they have a home this holiday... however...they weren't sure how they would give their three kids a christmas...the children's gifts were stored in the garage.... (kate wrieswyk) "we've always worked hard to give our kids whatever they need, or even try to give them what they wanted and for us to think that it was all going to be taken away from them ...and they did nothing to deserve that. it was really hard. " when santa and mrs. claus heard what happened from a close friend, who also happens to be the vrieswyk's neighbor. they knew they had to help. they brought all three kids toys, a gift for mom and dad, and gifts for the vrieswyk's neices whose gifts also got destroyed in the fire. (nats) (josh vrieswyk) that you know they came. a lot of excitement in the kids, and let them know that santa and they're might have been a bad thing that happened to the house and the garage and all of that stuff

and follow those folks and continue to follow those folks .or 25 years the chronic disease rates, lupus, rheumatoid arthritis, chronic heart disease, but also sexual assault, domestic violence victimization, perpetration, at the same time, this issue of how the are treat our children, has huge implications for the health and well-being of this nation. -- i had this conversation with law enforcement infrequently, and i met with all of our chiefs of police in my county to have this conversation. i did this presentation in carlisle, and they are seeing the issue and recruits. of that, that some of our recruits went through as children. there is a conversation to be had here about how we do a better job protecting the children of this community. dr. webster, do you have anything to add to that in terms of the a scores as dr. webster here? >> he is not here, maybe we can ask him later. >> he had to leave to mark certainly -- he had to leave? maybe that can inform this whole issue of how does violence exposure to violence through your childhood related to risk-relator violence. which lead to

they continue to follow those folks for 20, 25 years. ,he chronic disease rates lupus, rheumatoid arthritis, chronic heart disease, but also sexual assault, domestic thisnce, perpetration issue of how we are treating her children has huge invocations for the -- implications for the health and well-being of this nation. i really think that -- i have this conversation with law , iorcement not infrequently have met with all of our cheese chiefs inunty -- my county. they are seeing the issue in recruits. a lot of the trauma that some of our recruits went through as children. there's a conversation to be had about how we do a better job protecting the children of this community. host: dr. webster, do you have anything to add to that? could ask him later. he had to leave? certainly we can find out more. i think that could inform this whole issue of how does violence and exposure to violence through your childhood relate to the risk for later violence and gun violence issues. dr.: cdc funded research. host: that leads to the question, how can we help remove the congressional ban on cdc research? i

clerk i'm a research analyst dance fitness instructor actor i'm a copywriter i'm a veteran i have lupus cerebral palsy i'm blind and i'm working in a job i love i love because i was given a chance to contribute my skills and talents to show that my disability is only one part of who i am who i am who i am at work, it's what people can do that matters >> dickerson: that's it for us for 2015. year. access.wgbh.org [captioning performed by the national captioning institute, which is responsible for its caption content and accuracy. visit ncicap.org] sharyl: hello, i'm sharyl attkisson. welcome to "full measure." making headlines as the

as you know, my mother got lupus. >> here's the problem.urt order for a judge, just so you understand. so you violated his court order. you're looking at 15 days in lockup. >> what if i didn't know, had no understanding of that, just getting through to my family. >> i have the recording. i listened to it. >> i was talking to my mother. >> but you placed a call -- hold on. i need you to understand -- >> i understand. i'm asking you to understand me. >> i do. i understand you want to talk to your mother. i understand the situation that you're in. >> to know anything -- it was my mother, man. >> listen, i understand. but the point is you violated a direct order of the court. you violated our procedures also. >> i respect that. now have consideration for me as far as that was my mother. >> like i told you -- >> that's all i'm saying, sir. >> okay, thanks. >> no problem. >> charles always has an agenda for everything he wants or needs. every single lockup he's had i dealt with. i kind of -- don't want to say build a rapport, but i understand his

clerk i'm a research analyst dance fitness instructor actor i'm a copywriter i'm a veteran i have lupus cerebral palsy i'm blind and i'm working in a job i love i love because i was given a chance to contribute my skikis and talents to show that my disability is only one part of who i am who i am who i am at work, it's what people can do that matters >> dickerson: that's it for us today. next week we'll be looking back at 2015 with steven colbert and we'll talk to nasa commander scott kelly in space. be sure to join us. for face the jake i'm john dickerson. captioning sponsored by cbs captioned by access.wgbh.org [captioning performed by the national captionong institute, which is responsibib for its caption content and accuracy. visit ncicap.o] shyl: hello, i'm sharyl attkisson. welcome to "full measure." today, an unbelievable story that sounds more like episode of "breaking bad" than real life.

statement handbag is a celebrity staple and both were on display at the annual lupus bag ladies luncheon. we're taking you to the giving carpet, where it's not about what you're wearing, it's what you're giving. some of the hottest bags worn by some of the biggest celebrities up for auction at the 13th annual event. >> doesn't get better than that. >> i love this event. friends and purses, you know, have a good time and support a good cause, who doesn't like to shop and feel good about yourself after, too? >> bags donated by reese witherspoon, sharon stone, eva longoria and selena gomez, who recently announced she's been diagnosed with the disease. >> when people can relate and talk about their journey, they feel they are not alone. >> providing financial assistance to those battling the disease and the event raised $425,000 to help the cause. >> this organization does incredible things. >> you can find out more about the cause at lupusla.org. >>> from the heart of new york we'll see you next time.er crashed on its way to bakersfield. all four on board were killed. the pilot a flight nur

sold reporting people -- 78,000 then they would follow them over 20 years that chronic dizzies rate lupus, a chronic heart disease or sexual assaults or domestic violence perpetration a at the same time is an issue how we're treating our children has huge implications for the well-being of this station and i think i have this conversation with law-enforcement and i have met with all chief of police said my cutie -- my county. i did this study at the army war college and they are seeing recruitments and the trauma that they would press children. there is a conversation and to be had how to do a better job to protect the children of this community. >> dr. webster? baby she is not here. we will ask him later. he had to leave. but we can find out more about back to with whole issue of how does violence in the exposure through your childhood relate to later issues back with the cdc funded research. >> that leads to the question and how can we help remove that congressional ban? >> clearly dr. ziad lawyers have to work together we have excellent legislators here who'd have already opposed bills

lupus another common topic.nsgender really spiked after the first appearance of caitlyn jenner. >>> 2-year-old girl from southern california who is a cancer survivor with amputated arm is getting a special gift this new year. her parents. they've been searching for a kitten for their daughter born with a rare kind of cancer. left arm was amputated when she was only 10 months old. now that she's free of cancer, parents wanted to get her a kitten that had an amputation surgery to help her recover. the kitten had had an amputated leg because of injury. >>> now we're seeing the first pictures of that wayward elephant seal. she's in her new home along the marin county coast. the mammal center released these photos of the 900-pound pregnant seal. now at an elephant seal colony. she looks good. experts say it's a much better place for her since it's one of the areas main breeding colonies for elephant seals. veterinarians sedated her on tuesday and relocated her after she became lost. she didn't want to leave the water

presented on a trial in lupus were a lot of products just don't work very well.onveys additional benefits to these patients when they have few alternatives. that's the thing you need to take away. it makes a difference in the lives of patients were many other products have been tried and failed. why are you forecasting an increase in sales when insurance companies are dropping it? >> insurance companies are not dropping it at all. it gets reimbursed across the spectrum of 19 indications. we are working very closely with payers to make sure it is well-positioned for appropriate patients. opportunity to have many more patients benefit than is the case today. patients that could benefit from it are currently treated today. we want to make sure it's available to more. how can the markets at a price for something protected by patent that is life-saving? in some ways, the value is infinite. this is going to be a huge challenge for the pharmaceutical industry. we are living in a moment in which the anxiety about health care cost is causing governments to -- raising of d

she has lupus. she was one of 16,000 tennesseans who are part of a plan called cover tennessee. she wroatd me about -- wrote me about her chronic illness. she said she was deemed uninsurable, the only way to insure her was through cover tennessee. she was glad to have that coverage, and she was glad to hear about obamacare. and then she learned the truth. i cannot, she said, keep my current plan because it doesn't meet the standards of obamacare coverage. this alone is a travesty -- her words. cover tennessee has been a lifeline for me, with the discontinuation of cover tennessee, emily told me, i'm being forced to purchase a plan that will increase my cost by a staggering 410%. my out-of-pocket expense will increase by more than $6,000 a year. please help me understand how this is -- quote -- "affordable ." this is emily in middle, tennessee. we could spend all day telling stories of americans who like their health care plans but weren't able to keep them under obamacare. in november 2013, it looked like that might be as many as five million americans. the administration did so

i think of a woman named emily in middle tennessee who wrote me, who has lupus, who had a policy that she could afford. it had modest benefits and it didn't cost very much but it fit her needs. but obamacare canceled that policy and when she went on-line to find another policy, her costs went up from -- from $100 to $400 a month. i guess you've heard stories like that as well in georgia? mr. isakson: all the time. because what happened with obamacare is the following. people that had insurance they could afford and had bought coverage they needed were forced to buy coverage they didn't need because of the mandates in obamacare in terms of what had to be included. so it forced more coverage that you didn't need, which raised the premium that you paid so you ended up paying more and getting less, which was the mandates of obamacare that did it. mr. alexander: senator candy, of course, has a -- senator cassidy, of course, has a unique perspective as a practicing physician. i think he still practices some, as much as he can within the senate rules, but he sees patients regularly. what was

she has lupus. she was one of 16,000 tennesseans who are part of a plan called cover tennessee. she wroatd me about -- wrote me about her chronic illness. she said she was deemed uninsurable, the only way to insure her was through cover tennessee. she was glad to have that coverage, and she was glad to hear about obamacare. and then she learned the truth. i cannot, she said, keep my current plan because it doesn't meet the standards of obamacare coverage. this alone is a travesty -- her words. cover tennessee has been a lifeline for me, with the discontinuation of cover tennessee, emily told me, i'm being forced to purchase a plan that will increase my cost by a staggering 410%. my out-of-pocket expense will increase by more than $6,000 a year. please help me understand how this is -- quote -- "affordable ." this is emily in middle, tennessee. we could spend all day telling stories of americans who like their health care plans but weren't able to keep them under obamacare. in november 2013, it looked like that might be as many as five million americans. the administration did so