, potential infections in her body as a result of cystic fibrosis.hose challenges are still the same. >> what are the prospects? >> it is tough to say. following the story from the beginning, we're not dealing with a situation you can say this is what happened the last 10,000 times, this is rare. maybe a couple hundred lung transplants in children over the last ten years, in cystic fibrosis even fewer. cystic fibrosis is a genetic disease, this won't be secured by the lung transplant. i am a dad, you're a dad, it is a difficult thing, you want to do everything for your child, but this does not cure the disease. that's something the surgeons and her doctors have to contend with. >> buy some time, some years. everyone identifies with the parents, any parent would do anything they could to buy any time for their child. >> that's right. >> i want to go to jason carroll. you have been speaking to the family. do we expect to hear from them later today at the conclusion of the surgery? >> reporter: that's what we're hoping for and certainly that's a possibi

you mentioned she has cystic fibrosis.t's caused by a defective gene so it will affect both lungs so she needs both lungs transplanted. sometimes people just need one lung transplanted. also, just size, just the mechanics is an issue here. the lungs are too big, sometimes the adult lung, the donor lungs, can be trimmed. they use staples and actually staple around it to make the lungs smaller. sometimes they can actually use part of the lung, use only certain lobes of the lung to transplant as well. so those are a couple of options. but not ideal. you would prefer the right size lungs. but to your question, it is possible. >> after she -- if she was able to get a lung, are there other problems she could encounter after receiving an adult lung? >> yeah. so when you think about the adult lungs, for example, if you do trim them, there's a concern that perhaps they might start to leak and that would cause a buildup of air around the lungs as opposed to within the lungs. that could be a significant problem. also, it's not just t

with cystic fibrosis, it affects the lungs. the infections of the lungs can cause people to die.they have the young transplants, they're getting lungs that don't have the cystic fibrosis gene or the problem with the protein. they still are at risk for developing those infections, though. the rest of their body has the problem. the problem of cystic fibrosis is actually one of the proteins that regulates your electrolytes is damaged so it can affect your sweat, your digestive system, your sinusses and mucuses. >> a lot of people are paying attention to this. the guidelines are being reviewed. again, there's going to be more developments in this. >>> let's talk about something else. this virus that's scaring a whole lot of people, middle eastern respiratory syndrome. help us understand what it is and why it is deemed to be so dangerous. >> mers virus is a virus that affects the lungs as well. it can cause pneumonia, high fevers. it's concerning because it's deadly. so far there have been reports of 50 people infected with it. over 30 people have died already. just looking at the li

impact on finding the cure for cystic fibrosis.iratory disease that affects the breathing. the lungs don't function the way they should and you need a lung transplant. the first experience of someone with cystic fibrosis was miss cousin. i didn't understand why he had to take so much medicine until i realized he had a disease there's no that and really grown the foundation or a few years and contributed to cystic fibrosis and children's hospitals in the richmond area. we hope that, you know, cf is something that people will recognize cystic fibrosis and eventually we hope it means cure found. join the movement. impact your world at cnn.com/impact. >>> and a daughter refuses to give up. and because of her determination, her father's killer is now behind bars. her story next. dad. how did you get here? i don't know. [ speaking in russian ] look, look, look... you probably want to get away as much as we do. with priceline express deals, you can get a fabulous hotel without bidding. think of the rubles you'll save. with one touch, fun

my first experience with cystic fibrosis. had to take so much medicine every day, and then i realized when i was older that he had a disease that there was no cure for. that started me doing a foundation, and really we have grown the foundation over the last few days and contributed to cystic fibrosis as well as a lot of children's hospitals in the richmond area. we hope cf is something that people will recognize as cystic fibrosis, and we hope eventually it means cure found. impact your world at cnn.com/impact. she knows you like no one else. and you wouldn't have it any other way. but your erectile dysfunction - you know, that could be a question of blood flow. cialis tadalafil for daily use helps you be ready anytime the moment's right. you can be more confident in your ability to be ready. and the same cialis is the only daily ed tablet approved to treat ed and symptoms of bph, like needing to go frequently or urgently. tell your doctor about all your medical conditions and medications, and ask if your heart is healthy en

both children have cystic fibrosis, a genetic disease that makes breathing extremely difficult.he two lawsuits argue the children need to be an the adult list because there are too few child derns. court cases are set for next week. meaning that the girl and the boy have 8 more days to try to gallagher this live for us tonight. how is the girl doing, trace? >> the right-side of her heart is working way too hard because her lungs are not working hard inform. i want to show you why he she is up on the transplant list. they score 0 to 100 score. of the 1,682 people waiting on the list, only 1 139 have a sce greater than 50 which means they are in severe shape. sarah's score on monday was a 66 extremely high and today shot up further to a 78. the question is even if she gets lungs does she have the time. here is dr. mark siegel. >> she will need immunosuppress hant therapy. she is at a high risk of infection and rejection of the lung. in sarah's case and all other cystic fibrosis other organs are affected including the pancreas and liver. those have to be watched carefully. >> docto

he has cystic fibrosis and his brother died from the disease. the judge who aloud him and sarah to be put on the adult list is expected to hear the case on friday. although for sarah, it would be a moot point but it's important to the accosta family. the organ procurement and transplantation network has not changed its rules on the age at which a child can get on the adult donor list but decided to have a special committee review the age requirements. >> shepard: moll y thank you. >>> let's get to boomer acai son. he launched a foundation to help those with cystic fibrosis and families after doctors diagnosed his son with the disease. his son remotely graduated from boston college. boomer is one of the most visible figures in the fight against cystic fibrosis. >> thanks for having me on and good news for sarah. somebody somewhere lost a loved one and that's why we have donor lungs for sarah so we have to think of the amazing family that decided to become organ donors and sarah has a chance, all beat it's not a -- a lung transplant is very diffic

the cystic fibrosis is not cured.n still affect the new lungs and put people at risk for infections. she is on the drugs to suppress her immune system because of the transplant. it is not cured and still play a very important role for doctors to manage. >> sanjay, thank you so much. a long road ahead for sarah murnaghan but recovering this morning. >>> ahead on "starting point" just when you thought it was safe to go in the water. not one bit safe there. we'll talk to one of the fishermen who took this jaw dropping video of a great white shark. (gasp) nope. aw! guys! grrrr let's leave the deals to hotels.com. (nice bear!) ooo! that one! nice! got it! oh my gosh this is so cool! awesome! perfect! yep, and no angry bears. the perfect place is on sale now. up to 30% off. only at hotels.com (girl) w(guy) dive shop.y? (girl) diving lessons. (guy) we should totally do that. (girl ) yeah, right. (guy) i wannna catch a falcon! (girl) we should do that. (guy) i caught a falcon. (guy) you could eat a bug. let's do that. (guy) y

in her battle against the deadly disease cystic fibrosis, she has a leg up. that's the word from her relatives. you will hear from them about her next steps in treatment and their optimistic outlook. plus, look at this. the same storm system that hammered the midwest with rain and hail and funnel clouds yesterday has brought swatter spouts to the east coast. word of a tornado on the ground near washington, d.c. a live report from the fox extreme weather center all ahead as fox reports live tonight. ok, i am coming. [ susan ] i hate that the reason we're always stopping is because i have to go to the bathroom. and when we're sitting in traffic, i worry i'll have an accident. be right back. so today, i'm finally going to talk to my doctor about overactive bladder symptoms. [ female announcer ] know that gotta go feeling? ask your doctor about prescription toviaz. one toviaz pill a day significantly reduces sudden urges and accidents for 24 hours. if you have certain stomach problems or glaucoma, or cannot empty your bladder, you should not take toviaz. get emer

sis cystic fibrosis scars the lung and builds up pressure.the pressure in the lungs, worst it is. with cystic fibrosis, they can build up dramatically and she could die. >> reporter: she is battling for her life at children's hospital of philadelphia. she has been on the children's waiting list for a donated lung for 18 months and doctors told murngahan's parents she only has weeks to live without a transplant. she is now on the adult waiting list after a federal judge suspended the under 12 rule which has previously limited her options for an available lung transplant. the judge made a similar ruling for 11-year-old savijavier acosf new york. current transplant policy will be reviewed. we spent some time with the family at the hospital and asked sarah's dad what his daughter's life will be like after the transplant? >> just she goes back to school. be just like all the other kids. before we really had the decline of lung function, she went to school, did everything other kids did before her lungs got to the point where we are i want to go ba

suffering from cystic fibrosis and was just put oe adult transplant list. cbs reporter susan m >>> a judge just upped a 10- year-old's chance of getting a lung transplant. she suffers from cystic fibrosis and was put on the adult transplant list. susan mcginnis on this rare ruling. >>> reporter: 10-year-old sarah cheered when she heard the news. she will now have the same chance of receiving a lung transplant that adults do. >> she is not looking for easy, just possible. >> reporter: sarah's parents sued the government to try to revoke the so-called under 12 rule which puts children behind adults on the transplant list forcing them to wait longer even if they're sicker. >> we're very happy that the judge ruled this way. and it's changing and giving us an opportunity. >> reporter: the judge's ruling came after congressman from pennsylvania joined the family to push for the change. they pleaded with health and human services secretary kathleen sebelius to suspend the rule but she refused. >> time is running out. please, suspend the rules until we look at this

she does have cystic fibrosis that makes it hard to resist infections. she's getting drugs to fight them so that will weaken her. she may do well and let's hope she does. she's a bit of a bigger challenge. >> thank you so much. really appreciate it. >> my pleasure. >> we wish sarah and her family the best. >> absolutely. >>> now to an extremely, this is extremely dangerous situation. this is out of colorado. we're talking about five wildfires ripping through hillsides forcing thousands of people to get out and get out fast. dan, you're near one of biggest wildfires, the black forest fire, a mandatory evacuation in effect. how are people holding out? >> reporter: it's tough. this is an anxious period of time. let me explain where we are. we're in the parking lot of a community college. the fire is a few miles behind us. you can get a good view of that plume of shoek. you can see helicopter off in the distance. you can make out some of those aircraft dropping water on the fire. the critical need is to get more firefighters in place. they believe that will

sara suffers from cystic fibrosis. she got a new pair of lungs from an adult donor. the judge ruled that sara was eligible. they were considered too small for adult lungs and some were concerned that other parents may not try to sue their way to the top of an organ recipient list. >>> facebook changed its policy on mastectomy photos. the menlo park company says they will no longer remove the photos. the company says it will never ban the photos of mastectomies, buts they were removed when they were reported offensive. >> a sad situation in new york city. it could have been much worse if not for the quick thinking of a young mother. the 17-year-old mom was pushing her eight-month-old daughter in a stroller when a towncar jumped the sidewalk and plowed into them and pining the stroller underneath. the dazed mother quickly got to her feet and was able to pull the child to safety. incredibly both suffered only minor injuries, but the 68-year-old driver of the lincoln towncar suffered a fatal heart attack. he lost consciousness moments before the car jumped the curb. >>>

. >> a judge has allowed not one but two children with cystic fibrosis to join the adult transplant list. and we'll speak to boomer esiason whose son had this disease. >> and the government's fight against big chocolate. a lawsuit accuses two major chocolate companies of price fixing. that's all ahead unless breaking news changes everything on "studio b." >> first from fox at 3:00 in new york city, the president today strongly defended not one but two secret surveillance programs designed to track our phone calls and almost everything we do online. our e-mails, our photos, our videos, which web sites we visit and so much more. the president in california's silicon valley to meet with china's president, said that keeping our country safe requires modest encroachment on privacy. >> my assessment and my team's assessment, was that they help us prevent terrorist attacks. >> this is a dragnet. it's an overreach, and we have to find out why this is justified simply because of the nsa wants to do some data mining. >> shepard: the director of national intend generals james clapper defended the t

dying of cystic fibrosis. a judge's ruling this afternoon means she is days away from a life-saving lung transplant. i'll talk to sarah murnaghan's family. >>> and the teacher who saved a roomful of children, including her young daughters from the tornado in moore, oklahoma. suzanne haley joins me exclusively. >>> and michael jackson's 15-year-old daughter tries to commit suicide days after she shot this video in her bedroom. >> i need serious help. i'm crazy. i am crazy. >> was it a cry for help? and is it the first time? >>> plus, who is on the grill tonight. gun control, politics, the state of the catholic church. tonight i'm grilling annuity -- newt gingrich. everything from the irs to the shakeup in the white house in a circle. are republicans part of the problem. could chris christie be the solution? >>> also, my exclusive with a fisherman who reeled in what may be the biggest shark ever caught in america. over 1300 pounds. the video they have given us exclusively is unbelievable. think jaws in 4-d. >>>

. >> we can make an impact on finding a cure for cystic fibrosis.t affects breathing and the lungs don't function. my first experience was my cousin. i never understood why he had to take so much medicine every single day until i got older that i realized he had a disease there was no cure for. we started doing different events. really just have grown in the foundation over the last few years and contributed to cystic fibrosis. we hope that cf is something that people recognize but eventually we hope cf means cure found. join us at cnn.com/impact. ♪ bonjour ♪ je t'adore ♪ c'est aujourd'hui ♪ ♪ et toujours ♪ me amour ♪ how about me? [ male announcer ] here's to a life less routine. ♪ and it's un, deux, trois, quatre ♪ ♪ give me some more of that [ male announcer ] the more connected, athletic, seductive lexus rx. ♪ je t'adore, je t'adore, je t'adore ♪ ♪ ♪ s'il vous plait [ male announcer ] this is the pursuit of perfection. ...and we inspected his brakes for free. -free is good. -free is very good. [ male announcer ] now get 50% off brake pads and sh

. >>> a 10-year-old girl with end stage cystic cystic fibrosis now has a better chance of receiving a lung transplant. >> sarah mernehan cheered after hearing the judge's decision that might save her life. >> she's not looking for easy just possible. >> reporter: menahen who is 10 has cystic fibrosis. the judge changed the law which requires children 10 to wait for a child's donated lung. >> if we do not stand and do something, we would just sit there and watch her die. >> reporter: the judge's decision came after lawmakers appealed to kathleen sibilias to intervene. >> time is running out, please, suspend the rules until we look at this policy which we all believe is flawed. >> this is a, an incredibly agonizing situation where someone lives and someone dies. >> based on her age, based on her age. >> reporter: the laws are written because adult recipients have a better survival rate than kids. >> in her age, what they might be able to take is a larger adult lung and put it into each side of her so she will have a full set of lungs. >> reporter: the decision does not guarantee sarah a

sarah has end- stage cystic fibrosis. a genetic disorder that attacks the lungs.he push to find sarah a lung donor. has put the issue of who gets donated organs into the national spotlight. sarah's family has gone through a whirlwind legal battle to get a federal rule waived. it requires recipients of adult lungs to be at least 12- years-old. sarah's mother posted on facebook, that the donor is sarah's hero. and thanked the donor for giving her child the gift of life >>wildfires in colorado have burned thousands of acres. destroyed nearly 100 homes. and forced the evacuation of thousands of people. >> pam: and windy, hot weather there is not helping. fire crews are having a tough time getting the fires under control. kron 4's charles clifford has the latest >> reporter:right now there are 5 wildfires burning across colorado and the largest and most dangerous is the black forest fire which is burning.. here...to the south of denver and just to the north of colorado springs. >> reporter:this wildfire has burned about 7500 acres and as of wednesday evening there was

. >>> denny hamlin is in need for speed and also crusades or cystic fibrosis. check out this edition of "impact your world." >> i'm denny hamlin. we can make an impact on finding a cure for cystic fibrosis, a respiratory disease that affects breathing, the lungs don't function the way they should and eventually you'll need a lung transplant. my first experience was with my cousin. i never understood why he had to take so much medicine every day until i got older and realized he had we started doing different events and started the short track showdown a couple years after that and really have just grown the foundation over the last few years and contributed to cystic fibrosis as well as children's hospitals in the richmond area. we hope that cf is something that people will recognize as cystic fibrosis, but we eventually hope cf means cure found. join the movement, impact your world at cnn.com/impact. >> so nice to see. >>> ahead on "starting point" they say beauty is pain. that's what they always tell me. the exact moment women feel pain in their high heels an

girl withear-old cystic fibrosis may have a much better chance of getting a lung transplant. a federal judge is temporarily allowing her name to move up on the old waiting list for a transplant. the nation clarence plan -- nation transplant rules say they must wait at the ago -- and of the adult list. her father is thrilled an exception is being made. doing well. we're very excited with the news today that she will have the opportunity to receive loans. take of the listing of the age requirement applies only to sarah. a hearing on a request for a broader ruling will be held june 14. >> brian is back with a final look at at the weatherk before we go. take a showers today. * of light rain here and there. rain here andght there. tomorrow watching a storm from the west and tropical storm andrea. will bring showers to the morning rush. by the afternoon some of the bands could be heavier and even gusty breezes. i think it will stay in the 70's. by the weekend we will start to clear out. probably back in the sunshine and a bit warmer for the weekend. a couple of inches of rain possi

she has cystic fibrosis and was in desperate need of lungs but was two years too young to get on thergan list. after taking their fight to capitol hill they learned late tuesday new lungs were on the may. >> they were able to resize the adult lungs without any issue. it was a perfect fit. the surgery is done. she is heading to recovery. we expect her to be doing some things within the next couple days. >> sara should be able to go home in the next few weeks. >> we start this morning with a fox news alert. we have a fox news alert. jason leffler has died after a dirt track crash last night at bridgeport speedway in new jersey. leffle leffler's car flipped several times before his car hit a wall. he was pronounced dead at a nearby hospital. in a statement nascar released it says nascar extends its thoughts and prayers and deepest sympathies to the families of jason leffler he was a fierce competitor in our sport and he will be missed. 37 years old he made 423 nascar starts. he won twice in the world cup series. he leaves behind a 5-year-old son. >> jury selection in george zimmerman's

you know, cystic fibrosis, there is 150 to 200 lung transplants a year for cystic fibrosis.uild up of secretions in the lung and you get scarring in the lung because the lung is stiff. she is not yet on a respirator which is really good thing. once she is on ventilator, respirator, she is trouble because the lungs don't stand the high pressures is. sarah is getting sicker. that should move her up on the list. they tend to give priority for those who are the sickest. i think only be fair children be on the list, when you consider a disease, cystic fibrosis which affects many organs, because it gets worse as you get older. she is in worse shape than a lot of adults, would do better with a transplant especially now that we can transplant parts of a lung. martha: that is good point you make. the only justification for having a separate list for children they would not be compatible with adult lungs. we've proven that is not true, but the reason is separated wrong for separating them. >> bureaucracy has to keep up with technology. we have the medical technology and some of the sa

we can make an impact on finding the cure for cystic fibrosis. affects breathing, the lungs don't function the way they should and eventually you'll need a lung transplant. my first experience with someone with scystic fibrosis was my cousin. i never understood why he had to take so much medicine every single day until i got older and then i realize d that he had a disease that there was no cure for. we started the foundation doing different events, started a short track showdown. and really have just grown the foundation over the last few years and contributed to cystic fibrosis as well as a lot of children's hospitals in the richmond area. we hope that cf is something that people recognize as cystic fibrosis but we hope it means cure found. join the movement, impact your world at cnn.com/impact. >>> he's behind the leak that sparked this national debate over your privacy. so is he an american hero or traitor? you are about to hear both si s sides. i'm brooke baldwin. the news is now. >> this is the truth. this is what's happening. >> if former

in 2009, his brother who also had cystic fibrosis died whale waiting for a transplant.secretary sebelius urging her to change the under 12 rule. she was questioned about it during a hearing. >> the worst of all worlds in my mind is to have some individual pick who chooses and who dies. you want to process where it's guided by medical science and experts. >> dhhs has declined to comment on the on going legal matter, and on monday the organization that manages the list and works with hhs will hold an emergency meeting to review the lung allocation policy. the lawyer representing both families says the organization should do more than just review it. >> i would think the prudent thing to do is suspend the policy. >> and that's not entirely out of the question. in a copy of the letter written to secretary sebelius earlier this week, they said if the committee finds the available data suggests a change is warranted, the committee would be able to approve it. >> all right, thank you for that. i guess we will have to wait until monday to see what comes out of that meeting, whe

cystic fibrosis is becoming more of a chronic disease.this you will prolong her life and she will survive. >> they're living lot longer lives than before. >> she has a long way to go. she has a dream of being a singer and with these lungs she will make it. >> what do you think of the idea that a judge can step in and overrule a medical board's decision? >> it is interesting you asked that question. the very first story when this came out, i started covering it and peter johnson immediately was right after that. i said there was going to be an ethical committee with a judge that is finally going to make that decision and that is exactly what happened. >> is that good for the future of medicine or a bad thing? in this case it seems to be the right thing certainly, but in other cases i'm not so sure. >> that's a big debate and it's hard to know. for saving her life, i think that was absolutely the right decision. we're talking about maybe 20 other children that are on the list that i think they should be able to do it. the reason why this wa

sarah was born with cystic fibrosis.ericans fighting for their lives, fighting to breathe. the median age for survival is the late 30s. sarah's family had some reason to cheer this week. a judge stepped in with a ruling that could save her life and allow her to get an adoes lung transplant. her mother, janet, reacts to the ruling. >> odds are she is mum one, if not number one, she is mum two, for the region, her blood type. and before this -- before this ruling, she was number 100 maybe. so to talk about a difference, we had no chance, no chance of getting lungs. the odds of sarah die wrestling very high. we have a chance. there is no guarantee but we have a shot now. >> arthur kaplan joins me. the head of the division of the medical ethics at new york city university's medical center. welcome. >> thanks for having me. >> thanks for being here. that ruling was an exception but today the rules could change forever. right? >> that's right. we have a system that has been in place for many decades now for distributing organs

cystic fibrosis, of all end-stage lung disease does the best with transplant. that's her only hope.oing very well. they have to keep a close eye on her. she will be out of the hospital in a few weeks. she will be walking, dancing in the halls. >> seriously. she will be walking and dancing in the halls in what period of time? >> over a few weeks. the new lungs will bring her up to 70 to 80% lung function, from where she was, less than 20%. she will be able to live a normal life. what american wouldn't want their children to have this chance? >> sath lean sebelius wouldn't sign this exception. so in other words, the doctor was saying it would work ask she wouldn't cyb the waiver. was she basically giving this girl a death sentence then? >> i think she was. i think it's because she is a politician, rather than a physician. she kept saying, i'm not a physician. but she is in a position to make medical decisions. all the physicians i talked to said this should be done. they have more years todl1m li. thetes let's give them those years. >> talk about death panels. this sounds like a deat

she has cystic fibrosis. her condition declined sharply, got worse over the weekend. the call they waited for so long finally came. >> you're outside the hospital where sarah just got out of surgery. what do we know about how things went? >> her mother and father have seen her. and she seems to be doing remarkably well. she is in good condition. she's heavily sedated. she's heavily intubated. the surgery lasted about six hours. and we're told through a family spokesperson that doctors had no special challenges in resizing the lung to fit into sarah's chest. and just before we went to air we got a statement from the family. it says sarah is in the process of getting settled in the icu. and now her recovery begins. it will be a long road, but we're not going for easy. we're going for possible. and an organ donor has made this possible for her. obviously, she still has a long road ahead of her. there's always the risk of infection and the organ being rejected, but she took a very major step today. >> so you spoke to the family before the surgery, correct? >> yes. and as

she has cystic fibrosis. her condition declined sharply, got even worse over the weekend.arlier today, the family waited so long. jason carroll joins me. you're outside the hospital where sarah got out of the surgery. what do you know about how things went? >> i can tell you her father and mother have seen her and she seems to be doing remarkably well. we're hearing she's in good condition, heavily sedated. she's still intubated. we're hearing that tube will not come out of her throat for another 48 hours or so. the surgery, anderson, lasted about six hours and we're told through a family spokesperson that doctors had no special challenges in resizing the lung to fit into sarah's chest. just before we went to air, anderson, we got a bit of a statement here from the family. i'll read it in part because it does provide a little more detail. it says sarah is in the process of getting settled in the icu and now her recovery begins. it will be a long road but we're not going for easy, we're going for possible and an organ donor has made this possible for her. obviously, she sti

it's a powerful look into the lives of twin sisters born with cystic fibrosis and their struggle to fight this often fatal genetic disease. their inspiring story is next, and later in the broadcast, they'll join us in the studio to talk about the film, their journey, and how you can help, and now "the power of two."

cystic fibrosis has destroyed her lu

the 10-year-old with cystic fibrosis is now in intensive care.s, sarah knows she needs a transplant and is in a battle for her life. >> no, i'm never going to, never, never. >> reporter: sarah's parents also are not quitting, frustrated because friday, the federal government refused to intervene. >> somebody needs to stand up and say this isn't right. this is a human issue. this isn't politics. this is a human issue. >> reporter: even though sarah's at the top of the child's transplant list in her region and has been waiting for 18 months, federal guidelines disqualify her for an adult lung until she's 12, unless every other adult on the waiting list turns down a donor lung. in an e-mail obtained by cnn, health and human services secretary kathleen sebelius told sarah's parents she's not authorized to intervene but is ordering a transplant policy review, adding, "i know this is not the answer you were hoping to receive. my prayers are with you." >> she says, oh, i'm so sorry. i know this isn't what you wanted to hear. it is in her legal authority

cystic fibrosis has destroyed her lungs. without a transplant, doctors say she will die possibly within weeks. sarah has been waiting for more than 18 months for donor lungs from another child. it's a fact that pediatric lungs are scarce, scarcer than lungs from adult donors. here is another hard fact. children younger than 12, including sarah, no matter how sick they are, face a steep hurdle when it comes to getting adult lungs. the current transplant rules prevent them from being prioritized on the waiting list for adult lungs. sarah's parents filed a lawsuit. to change that policy. and just a short time ago, a federal judge signed a court order removing that hurdle for sarah for the next ten days. here is exclusive video of sarah reacting to the news. >> woo! woo! woo! woo. >> she's a very strong little girl. jason carroll joins me now. what does this ruling mean? is this the last roadblock for her to get a new lung? >> it may be the last legal hurdle for sarah murnaghan. but certainly she has a lot of challenges still ah

sarah murnaghan has end stage cystic fibrosis. last week a official judge suspended a rule that prevented her from getting an adult lung. the hospital she is being treated is not releasing information but it could bring change for other children. another young patient at the hospital also went to court to be added to the adult donor list. >> meteorologist mike nicco has the forecast. >> how about all sunshine? >> no cloud cover or drizzle for the commute or flight arrival delays at sfo but we have warmer weather on way but nothing is as extreme as we have seen and when we get beyond that we have cooler-than-average weather on the way and we will try to find some summer heat. >> plus, dramatic images from los angeles, the serious concerns for accident victims after the treat corner is turned into a virtual geyser. >> also, the jaw dropping video of a stroll that nearly ended in disaster, and how a dog >> covering san rafael, south bay, pleasanton and all the bay area, this is abc7 news. >> a 35-year-old woman is in critical conditi

>> a federal judge has granted a temporary order hoping to save a little girl who is dying of cystic fibrosisthe order allows 10-year-old sara american that hand to be eligible for donor lungs from an adult transplant list -- until a june 19th court hearing. sara's parents challenged the rules that say children under 12 must wait for pediatric lungs to become available. >> up next key to securing your phone could lie in your finger. the latest tech rumor when we return. >> brian, our first named storm of the 2013 season has formed. we're going to have details and let you know how it may affect us later. >> ever get tired of punching in your four digit pass code. the iphone will have finger technology unlocking the device. apple may address the rumors when the company kicks off it's worldwide developers conference. >> an airline with reputation for extra fees is making a new cost saving move. passengers will be able to open a cold can of wine on spirit airlines. spirit says the cannes are easier to stack and store on the plane -- passengers who don't fancy wine still can order wine. >> from th

organ donation is reportedly receiving that lung transplant. 10-year-old sarah murnaghan has cystic fibrosist to survive. joining me is dr. gaston of university hospital case western. explain what you understand about this case and how quickly once they get the go-ahead for the transplant to happen how quickly this >> yes. thanks for having me. so it can be quite a lengthy process in terms of identifying whether or not the donor lung is okay, but that will have to be harvested and taken often between hospitals, sometimes even between states to be brought to sarah to be put in. there are some things that it's not uncommon that a child will go to the operating room to get a lung and in this case it will be two lungs, that the lungs aren't satisfactory. there's a lot of steps that happen between now and the time the surgery is done. >> doctor, one thing i want to show we have a facebook posting coming in saying, god is great. sarah got the call. she'll be taken book to the o.r. in 30 minutes. please pray to sarah's donor, her hero. may god grant them a peace that surpasses understanding and the

she lives near philadelphia and suffers from severe cystic fibrosis. >> you can say goodbye to high calorie sports drinks and candy bars in vending machines because the agricultural department announced for the first time it will make sure that all foods sold in the 100,000 schools are more healthy by expanding the fat and calorie limits during the school day and allows states to regulate student bake sales. this could happen next school year. >> good to know. >> something you do not want to see while trying, the cabin of your plane filling up with what looks like smoke. >> after delta flight took off from jog passengers got a scare when the cabin started to fill with what they thought was smoke. >> it looks scary. >> the plane was shaking and hit turbulence and a passenger took this picture but the smoke turned out to be fog. >> it was created when the 90-degree weather in new york was mixed with cool air from the air conditioning. mike, what do you think of that? the fog wasn't dangerous but the pilot gave everyone on the flight free alcohol. not the kids. the grownups. >> so they have to

she has cystic fibrosis. a disease that makes it very hard to breathe.is she is only 10 years old. a couple of years too young to go on the waiting list for adult organs. in fact, she can get an adult organ only if every other adult on the entire list can't take it. and since there is so few child donors, sarah's parents say their daughter will likely die if the government doesn't change the rules. >> i have not asked for special treatment for sarah from day one. what i have done is sat down and looked at the donor pool and the way these rules are written and i have said, you know, this is against the littlest children. and so what i am asking equality for these kids. >> shepard: equality for these kids. the secretary of health and human services kathleen sebelius has agreed to review donation policies but sarah's parents are saying their little girl just doesn't have time to wait. trace gallagher has this live from los angeles. it's my understanding you spoke with sarah's mom today. >> and the reason, shep, she feels her daughter is being discriminated

it's a powerful look into the lives of twin sisters born with cystic fibrosis and their struggle to fighthis often fatal genetic disease. their inspiring story is next, and later in the broadcast, they'll join us in the studio to talk about the film, their journey, and how you can help, and now "the power of two."

he has cystic fibrosis the same disease that killed his brother two years ago. >> it is the end of his life at 11 and i feel that is not fair because of a policy, it shouldn't be that way. >> reporter: national organ donor policy gives top priority for lung trance plants to people 12 and older, javier is one of two children of the philadelphia children's hospital waiting for a lung transplant. the other is ten-year-old sarah murnaghan. >> as a mother and grandmother i can't imagine anything more agonizing. >> health secretary kathleen sebelius has a power to wave the 12 and older rule but has not. >> this week congress pressed her on the case. >> why would we do it? why do we do so much bull crap around this place when we have a chance to save someone's live. >> there are 40 people in the highest acuity list waiting for a lung. >> thursday a federal judge issued an order making sarah an >> thursday a federal judge issued an order making sarah an exception to the rule. that decision prompted javier's mother to contact sarah's attorney stephen harvey. he now represents both families and

murnaghan has been battling cystic fibrosis. she reportedly had only weeks to live when her family challenged a policy banning children under 12 from receiving adult organ donations. >> it was a direct result of the rule that allowed her to receive those lungs. >> sarah and another 11-year-old it was ruled should be eligible for adult lungs. >>> should president obama be more forceful when it comes to intervening in syria? one major political player thinks so. political reporting, what former president bill clinton said to senator john mccain in a closed press event tuesday. clinton reportedly said president obama should support rebels against president bashar al assad adding any president, obama included, risks looking like, quote, a total tool, end quote, as they act too cautiously. this news comes amid a new nbc/"wall street journal" poll showing by and large, americans oppose intervention in syria. just 15% favor u.s. military action. the bloody conflict rages on, meanwhile. yesterday alone, syrian rebels reportedly stormed

dying of cystic fibrosis.eans she is days away from a life-saving lung transplant. i'll talk to sarah murnaghan's family. >>> and the teacher who saved a roomful of children, including her young daughters from the toad