first learned the white house wanted to honor her for her work to find better treatments for cystic fibrosis cf. >> we have been really focused on accelerating research. >> reporter: emily, who is 30 and takes variety of medications has a rare, advanced stage of the progressive lung disease. >> the funny thing about cf is it is very possessive. i look really healthy on the outside and that mask the fact that i have advanced stage disease and i'm about 35 percent lung function. >> reporter: from her home in bala cynwyd she started emily's entourage about raising money about cystic fibrosis. it has contributed more than 1.5 million-dollar for research on the rare mutation that is threatening her life. >> we're really trying to buy time, so that there is a future where i can benefit from. we're running out of time report report her time fighting cystic fibrosis will be recognized by the president's precision medicine initiative that is encouraging research on targeted treatments and honoring people like emily who will be among nine awarded as champions of change. >> my hope is that emily's ento

she lives with cystic fibrosis. i sat down with her to learn about her entourage and why many people including the president consider her an inspiration. >> cystic fibrosis is a fatal genetic disease. >> emily was a care-free child with no cure in sight. cystic fibrosis grips emily's lungs and digestive system which will eventually shut down. the average life expectancy is 41. >> reporter: i was really looking forward to talking with you. she is now 30 years old. time is precious. >> i have really advance stage cystic fibrosis and about 35% lung function and not a lot of time. >> reporter: i learned she has a big heart. she's the champion behind emily's entourage, a community fighting against cystic fibrosis. >> there have been really big breakthroughs in treatment of c.f. for many people. unfortunately, i have a really rare mutation that hasn't benefited from them. >> reporter: in 2011 her goal was to raise 50 grand. they have raised $1.5 million. yet emily isn't just giving back. she is giving herself. >> i actual

raising funds and awareness for cystic fibrosis and she lives right here in our area. was one of nine people honored all across the country. congratulations to her. wonderful work she's doing. >> thank you for watching "eyewitness news" at 11:00. for lesley, kate and everyone here i'm jessica dean. we're always on at cbsphilly.com cbsphilly.com. up next is blue bloods. have a good night. ♪ >> announcer: the following is a paid advertisement for m&r real estate. have you ever wanted to flip houses like the pros you see on tv? are you tired of working endless hours for little pay? are you stressed out over car notes, mortgage payments, and credit-card debt? well, here's your opportunity to break free. the cast of the hit house-flipping reality show "reinas de realty" are bringing a free house-flipping live event to your area now. you've seen them on television buying and selling real estate and now these internationally recognized kings of house

raising funds and awareness for cystic fibrosis and she lives right here in our area.ne of nine people honored all across the country. congratulations to her. wonderful work she's doing. >> thank you for watching "eyewitness news" at 11:00. for lesley, kate and everyone here i'm jessica dean. we're always on at cbsphilly.com cbsphilly.com. up next is blue bloods. have a good ni mr. rojas, when questioned by the joint drug task force you identified the individual who authorized the murders of the six victims in this case. correct? yes. is that individual present today? that's him. rolando vega gave the order. estás muerto, javier. muerto. (gavel bangs) the people rest, your honor. danny: you did good, javier. yeah, i'm a dead man. relax. pretty soon you'll be on a plane to god knows where with a drink an

cystic fibrosis is calledused by a faulty gene that stops lungs from working properly.e has to take a pill each day to live a normal life. he has been taking part in a trial of a new genetic treatment which may turn out to be simpler and more effective to the gene therapy involves inhaling healthy copies of the gene into his lungs. the results have been promising. >> for the first time in the world, we are beginning to show by giving a gene therapy repeatedly we can improve the workings of the lungs in these patients. we have to caveat that a little bit by saying the changes we saw were modest. we saw a stabilization of the functioning of the lungs. >> this powder contains gene that seems to help the patient. it is far from being ready for the clinic yet. they still need to make it more effective. these early results show in principle that gene therapy could work. >> any treatment probably will not be ready in time to help him. but he and his fiancÉe are hopeful about their future as they plan for their wedding. >> there were cheers and champagne today as the plane know

it is an organization raising fund and awareness for cystic fibrosis treatments. congratulations to emily. always a big day when you are honored by the president in the white house. >> yeah, couple local girls being honored today. fantastic. >> exciting stuff. >> not a great day for traveling though if you are were traveling to get up and down between the cities. >> it depend where you were and if you got caught in one. i got caught in the storm in the lehigh valley a lieutenant of folks in the shore atlantic city expressway, garden state parkway seeing serious problems and another round tomorrow. i do want to show you one good thing, if you were watching 15 minutes ago we showed you this camera. it was completely blinding rainfall. you could not seaboard walk. now business is back to normal. maybe everyone duck in the shops, bought more sun screen for tomorrow, grabbed something to eat and then back on the board in ocean city after that heavy downpour that just rolled on through. but further north still some heavy rain to get through before these storms move out.

she has advanced stage cystic fibrosis and co founded emily's entourage. that organization raises fund and awareness for cystic fibrosis treatment. emily is one of nine people honored from across the the country. >>> so exciting, she must have been just thrilled with that honor. >> yes. >>> before you walk out the day we are updating your top store thinks morning including late night debate to remove the confederate flag in south carolina. >>> plus the doughnut shop dust up that just won't go away. now pop star ariana grande isn't only one under fire after she apparently licked a doughnut. >>> call it a custard crisis why rita's has stopped selling custard in its stores and we will tell you how it is replace ago this frozen treat. details on that coming soccer. top chef. soccer. top chef. [whi stles] soccer! top chef! [shouting] disco! [singing] say it and see it. the x1 voice remote, only from xfinity. >>> well, the word this morning is a california doughnut shop where pop star ariana grande was seen licking everything that is good. we cannot forget that

so i have cystic fibrosis which is a fatal and genetic aggressive disease. pry effects the lung and sdi guesstive system but pretty much affects every organ in the body. i was nominated for this award and actually got a phone call when i was in italy. i missed the phone call from the white house, which is the one phone call you never want to miss. fortunately, got in touch with them and heard this awesome news. >> we were talking during the break about the white house experience and how amazing it was. >> totally awesome, surreal. an encouraging experience and gives me a lot of hope. >> your situation can be described as a race against time but your foundation is also helping to make big strides in the cystic fibrosis research. tell me about that. >> yeah. i have a rare mutation of cystic fibrosis and there have been big breakthroughs for cf treatment in the past few weeks and in the past few years as well. unfortunately, none of them help my rare mutation. as an organization, we're focused on accelerating research for my mutation. so far we've raised about

. >> we told you about sarah's struggle with cystic fibrosis.he change she wants to see that will help other children like her. >>> plus flying money. the cash came out of an armored truck. several drivers scooped it up. next the punishment they could face if the money isn't returned. >>> how much tv does your toddler watch? a new study says kids who watch too much tv may struggle socially by the time they get into middle school. researchers say too much screen time means less time for family interactions and social play. excessive tv viewing may also lead to poor eye contact habits which are vital to social relationships. the study is published in the journal of development and behavioral pediatrics. >>> a push to fund life-saving diseases in our area. >> one local girl who survived after making medical history was front and center urging law makers to act. she is 13-year-old sarah murnihan. she got a big hug at the event in radnor this morning. sarah survived an unprecedented double lung transplant. she was joined by her family and others with

how her fight begins cystic fibrosis caught the attention of the president. >>> the fall out continuesr bill cosby's deposition admission, but what could it mean for the comedian in the courtroom, moving forward. good evening i'm jessica dean. tonight we are hearing from the attorney of three women involved in the defamation suit against cosby "eyewitness news" reporter steve paterson has more on the story that is getting national attention. >> reporter: it is a big big deal. >> reporter: to the general public, following the fall of bill cosby monday's revelation may be a new salacious twist casting more doubt on the embattled cosby but to the attorney joe cameraata it is difference between winning and losing one of the nation's most high profile cases. >> these ladies are victims. >> reporter: he represents three women in the massachusetts defamation case against cosby. we spoke to him through face time. >> when they accused mr. cosby of sexually abusing and assaulting them, he responded by branding them liars. >> reporter: monday formally sealed testimony from a 2005 sexual assault l

advanced form of cystic fibrosis has left emily crammer with 35 percent lung function but her voice aste is stronger than ever. thirty year-old bala cynwyd woman is being honored for her efforts in finding new treatment options for this devastating disease. today she will go to d.c. as one of nine people recognized by the white house as champions of the change specifically for her work with emily's entourage which has raised one and a half million-dollar so far. at ward will be presented to emily as part of the president's precision medicine initiative that encourages research on targeted treatments. >> my hope is that emily's entourage and precision met initiative will lead to a break through that will give me a future. >> emily says presearch from precision medicine has potential to save her and tens of thousands of other cf patients but time is running out so she hopes today's honor will raise more awareness and money for this cause. if you'd like to help emily's even rage or learn more about her honor head to our web site at cbs philly.com. i thought it was interesting that with cf

i learned a lot about cystic fibrosis over the last couple of weeks. a disease that affects the lungs and the digestive system. makes it incredibly difficult for the small number of people frankly who suffer from this. it's one of those things that doesn't get a lot of money for research. so organizations like this help to raise the money to get the research -- >> well, congratulations to them. a lot of money. >>> beautiful morning at 5:20 that you're waking up to. if you're looking at a thermostat -- 69 not even 70 degrees yesterday this morning. it is gorgeous. >> enjoy it today. maybe in the next couple of days. >> we'll keep it going by popular demand. it is rather cool. in fact you might need a light jacket before you head out the door. only in the 60s in shenandoah valley and panhandle of west virginia. closer to washington, only near 60. montgomery county in maryland and in northern virginia in the low to mid 60s. and prince george's county, anne arundel and calvert, in the upper 60s. but inland it's in the mid 60s. so you can see later today be

and drug administration would approve a new application tore one experimental treatments for cystic fibrosis have it on the record from the fda they have approved that nda, the new drug application for vert ex's experimental cystic fibrosis treatment. it goes into effect effective today. the stock is halted right now because of the pending news, we have it, the shares have not reopened. but scott, the shares were up about 4% heading into the news halt. we'll bring you up to speed on what happens when the stock reopens for trading. >> the climb may continue. dom chu, thank you very much. probably a good chance to go to chicago to our steve liesman, senior economics reporter on the jobs report. and the aftermath. and steve, what do you make about the way that the markets are reacting to what was probably a more disappointing bit of information than not? >> are you guys all like frowning around the table there? i mean -- so depressing listening to you talk about the jobs report. 223,000 jobs, a very narrow miss on the consensus. we've done three million year over year. had you the wages were fl

does so much for the cystic fibrosis community. last year the white house launched the president's precision medicine initiative with the goal of using research and technology to focus on individualized treatment. >>> now your nbc 10 first alert weather. >> a steamy start this morning, warm, too. 78 degrees at 4:27. the flags are blowing. that's more mugginess coming in. could fuel showers and possibly thunderstorms already tracking showers moving across pennsylvania this morning. >>> drivers, listen up. you'll be digging for more change in your console soon. it will cost you more to travel the pennsylvania turnpike soon. ahead, we'll have details on a toll increase and tell you when it starts. >>> nbc 10 breaking news. >> an international sports sensation is back on her home turf. u.s. soccer star carli lloyd arrived at the airport just a few hours ago. >>> should he stay or should he go? there's an effort in new jersey to push christie out of office because he's now focused on winning the white house. >>> we're tracking showers a

her name is emily crammer a 30 year-old bala cynwyd woman whose advanced cystic fibrosis inspired her to find new treatment for the the disease and in the process she has raised one and a half million-dollar, an effort recognized by president obama a. so this is a big deal. today em lie license one of nine people as people awarded champions of change as part of the precision medicine initiative that encourages research on targeted treatment. through her organization, emily's entourage she's buying time for a medical break through that she hopes to benefit from. despite losing 65 percent of her lung function her voice as an advocate is as strong as ever. >> my hope that is emily's entourage and this precision medicine initiative will lead to a break through that gives me, you know, a future. >> emily says research is evolving from precision medicine and has potential to save her and tens of thousands of other patients but of course as you heard her say time is running out so she hopes that today's honor will raise more awareness and money for that cause. you can find out more about emi

. >> reporter: czar, who has cystic fibrosis, cf, had a double lung transplant two years ago after her parents successfully battled restriction that is would have prevented the life saving surgery. >> we need a cure for cf. we can all agree that curing diseases is never in the best interest. >> legislation increases funding for national institutes of health by $10 billion over the next five years. it puts more resources in the hand of the food and drug administration, to be testing and approval of new life saving treatments. >> reporter: meehan and other in the medical community want the senate to join the house in passing the bill. >> you think it can never happen to you. >> reporter: he has als and speaks through a computer. her future depend honorary search to find better treatments that would be supported by the cures act. >> i am here today because i want my life back. >> we're in the cusp of so many areas hopefully this can push us over the top. >> reporter: legislation that is in the senate committee has been supported by both democrats, and republicans and the white house has n

. >> we talked about this for a couple weeks, the pricing for the cystic fibrosis drug, it got the bouncedespite the high valuation, i think you continue to stay with it. >> a drop for humana. >> it's for sale, we have known that for a long time. there is confusion around the transaction. there is a big derisking in the name right now. i think they have something here. >> a couple follow through on the back of it, but the argument is that there is a lot of competition out for these guys. a lot of people thought they were broken. you take a look, it is not broken. >> this was on the settlement on the deep water, up 5% or so. this went up on the 50 day average, and if you look at oil, it is starting to break down again. >> and a pop for turtle vision. check out this amazing footage at the great barrier reef. conservationists attach ad go pro to the shell to get a turtle eye view of the sea. >> that is awesome. >> so what if go pro had a -- instead of using a turtle. >> that should be their next thing. >> have you ever been turtling? >> i'm going to go to break. coming up, i'm not going to,

this is all about a drug meant to treat cystic fibrosis. there are high expectations whether it can make inroads. there are about 70,000 people that suffer from this genetic lung disease. those shares we'll watch. >>> let's get to the big jobs report that came out this morning one day earlier than usual because of the holiday. the economy added 223,000 jobs last month, slightly below expectations. >> the unemployment rate fell to 5.3%. it's extraordinary. the lowest rate seven years. the question now is what these numbers mean for the fed's next rate hike or first rate hike. joining us steeple fixed income and lasalle network. lindsey, what do you think? does the fed raise rates on the back of these continued job claims falling unemployment rate? >> it's hard to justify a near-term rate increase. 223,000 is well below expectations. when you factor in the down regard revision this calls into the question of the market's overzealous of labor conditions. that fully reflects the fact half a million americans dropped out of the labor force if we

. >> help is on way for young americans with cystic fibrosis with a new drug that attacks the underlyinghich is mucous blocking the airway approved for those 12 and older but cost is a factor up to $250,000 for treatment for a year. >> if you fly out of san francisco international airport over fourth of july keep your eye out for a bit of puppy love. k-9s like this are on hand at sfo starting today to provide extra comfort before you board the plane. you will be able to meet and pet the dogs, the peninsula humane society and spca team up with united to help passengers deal with the stress of travel this busy holiday weekend. look for the therapy dos through sunday. we have smaller lanes and they are filled to the bridge so stress reduction could not hurt. >> it would be nice if the therapy dogs property you over a nice little cocktail, as well. >> the golden st. bernard. >> pillowy clouds on instagram? who wrote that? >> with saturated colors of the impending sunrise. >> they are in the wrong business. >> taking you outside it is looking beautiful with live doppler hd showing you it is a

she's living with advanced stage cystic fibrosis and also the co-founder of emily's entourage which focuses on finding new treatments and cure for the disease. it will feature people across the country who empower and inspire people of their community. she talks about her organization on her website. >> we are at our heart a family organization that is being propelled by a community that keeps getting bigger. we're one family and there's a lot of other families just like us. >> last year the white house launched the president's medicine initiative with the goal of using research and technology to focus on individual -- individualized treatments. >>> the ronald mcdonald house of one of philadelphia's oldest charities. the demand for the organization's services are sky high. now leaders are struggling to offer help to everyone who needs it. nbc10's katy zachry shows us some challenges facing the ronald mcdonald house. >> reporter: the ronald mcdonald house has a great presence in philadelphia. some of the biggest cheerleaders are philadelphia eagles players. now it needs more community suppor

she was honored at the white house for all that she's doing to change how cystic fibrosis is researched and treated. you can see her right there on stage in the yellow sweater. one of only nine people being honored today. she's a co-founder of emily's entourage. emily does more than just help raise money. she even donates her own cells for research. outside the white house today, she told us how honored she is for today's)invitation. >> it's exhilarating, it's been totally surreal. i feel deeply honored, the stories and people, the other champions of change are so inspiring, and it's really really powerful to be here and i'm so honor eded. >> emily's entourage has raised over $1 million in the last four years. one person really making a difference. >> headed in the right direction. >> incredible amount she's donating her own cells is really impressive. >> renee, thank you. >>> the doctor is in. they will be soon for a set of patients being treated by an area medical school. the philadelphia college of osteopathic medicine is launching a home care program for mobility challenged and frai

. >>> and "news4 your health," a new treatment could be used to deal with cystic fibrosis.ease causes damage to the lungs. researchers in new england -- or in england say a new gene therapy stops the lungs from becoming less effective over time and the patients inhaled dna molecules to replace the defective genes. >>> all right the foodies give yourself a pat on the back. a new survey of 500 women who are adventurous eaters say they weigh less than their picky counterparts. female foodies also eat healthier foods and are more active. the results of the study should inspire people to try new foods. one of my favorite things to do is try new foods. >> who knew? just trying different stuff. >> there you go. >> maybe you eat less if you try a lot of different things. >> maybe i should try it. >>> you can get six pack abs -- no you can't. without surgery or hitting the gym. >> i don't believe it either. we have hollywood's best kept secret to getting instant abs. go to a skin expert and have lipo. this requires putting paddles on to your stomach. tiny lasers help reduce fat cell

they are the masters at combining drugs and cystic fibrosis is doing that.ther people keep mentioning is huge, bristol myers. when you talk about cancer leadership, bristol myers is out there. now the company said they don't need to be immune oncology but buying bristol myers will remove the needle for gilead. another one is liver diseases intercept. we talk about them a lot. that's a smaller company. a lot of people talked about the things that would go together there for gilead and intercept and then i'll finally say one we didn't put up there but a long-time investor was telling me cell gene he thinks could be a potential. these are huge names. i should mention they may go for smaller, earlier stage deals. >> meg, real quick, do you think we could see anything similar to what we're seeing proctor and gamble and coty could we see other than buying bristol myer, could they do a deal with the company for some of the cancer drugs they have allowing that company to concentrate on a different area of treatment and gilead would get what it wants, as well, the ot

she had advanced stage cystic fibrosis. she co-founded a group that raises money and awareness for treatments and eventually a cure. since 2011 they each raised more than $1.5 million. >>> hundreds of thousands of people gathered in weak dor today for pope francis's final mass. it was held in quito bicentennial park which commemorates ecuador's independence from spain. in the sermon the pontiff talked about religious evangelism. tomorrow francis travels to bolivia before ending his week-long south american tour in paraguay. >>> nbc10 travelled to the pope's homeland of argentina this summer to give you an exclusive look at his life and work before he became pope. in buenos aires he's known as a slum priest. he spent a great deal of time serving and working among people in the poorest neighborhoods. and that work continues today with a connection back to our areairrea area. >> reporter: so thousands of miles from where we're standing people in pennsylvania are helping to see a dream that you have come true for children here.

she has cystic fibrosis and received a double lung transplant two years ago capturing the hearts of millions today she's helping congressman patrick meehan advocate for the 21st century cures act that bill would add $10 billion for pro research do help fine cures for diseases. murnaghan with the final word at today's news conference at the penn medicine in radnor. >> i think that you should um like give the money to -- to cure these diseases that are bad bad. >> couldn't have said it better. (applause). >> house passed the measure last week the bill awaits act in the senate we'll keep an eye on it and let you know whether it passes. >> 12-year-old holly hudson used to have as many as 50 seizures a day. a year ago her life changed dramatic. >>> this is mazing thanks to new laser brain surgery that took two minutes and three stitches. fox's nicole garcia has the story. >> first words i remember my mom saying was "she has three stitches" to nurse in my hospital room and in like, i have stitches. where is my hair d i have brain surgery? she comes over and sits on my bed on my hospital bed and sa

you may remember 12-year-old sarah she has cystic fibrosis and received a double lung transplant.he's helping congressman patrick meehan advocate for the cures act. it would help find cures for diss tick fibrosis, alzheimer's als and park kin source'. murnaghan with the final word at the news conference in radnor. >> i think that you should, like, give the money toward these diseases that are bad. >> couldn't have said it better. (applause). >> the house passed the measure last week. the bill now awaits action in the senate and of course we'll keep an eye on it and let you know whether it goes through. >> as if it wasn't already inviting enough, the reading terminal market will soon get a facelift. the art place group is investing $160,000 towards a streetscaping project outside the market. work will be done near 11th and filbert streets and officials say they're hoping to transform that dark underpass you see into a hub that welcomes visitors to the mark. the project will also feature creation of outdoor space that will be used for events and performances. >>> the philadelphia fr

two decades ago to screen embryos for one disease, cystic fibrosis. because of advances in the mapping of the human genome, he says it can be used to root out virtually any disease caused by a single defective gene. let me do a rapid fire yes or no. can you use p.g.d. for tay- sachs? >> hughes: yes. >> o'donnell: muscular dystrophy? >> hughes: yes. >> o'donnell: sickle cell anemia? >> hughes: yes. >> o'donnell: hemophilia? >> hughes: yes. >> o'donnell: huntington's disease? >> hughes: it's one of the most common disorders we test for yes. >> o'donnell: alzheimer's disease? >> hughes: if it's a mutation in a particular gene that causes early onset, we can test for it, yes. >> o'donnell: so you can test for alzheimer's. >> hughes: this is a small subset of a particular kind of alzheimer's that attacks very early in life. >> o'donnell: colon cancer? >> hughes: if we know which of the colon cancer genes, yes. >> o'donnell: breast cancer? >> hughes: we do it regularly. >> o'donnell: dr. hughes' lab is one of a handful in the country that provides this gene

. >>> well, people living with cystic fibrosis in our area got a huge helping hand. had the honor of emceeing the breath easy bash last night. they honored 16 young professionals who spent the last few months raising nearly $50,000 for research and development. some of the photos from the beautiful night on the rooftop party in chinatown. i want to add my congratulations to a job well done for the young folks who put a great effort into raising some money and helping with the disease that is rare. and so it doesn't get a lot of money for research and development from you know big pharma and that sort of thing. a great effort last night. a good time. >> congratulations to them. >>> beautiful start to the morning at 6:21. temperatures not even in the 70s really this morning. looking great. >> can we keep it like this for a while? >> let's keep it going. the birds are chirping so hard they're wincing. they're loving this cooler, drier weather that's pushed in. everything enjoying this. all living things. as we're starting off this morning, when you step out you might ne

. >>> a new gene therapy is showing some promise for people with cystic fibrosis. patients inhaled molecules of dna in order to replace a defective gene with a healthy copy in the lungs. after one year they found their lung function was almost 4% greater than patients who received a dummy therapy. the treatment didn't actually improve lung function but did keep it from declining any further. >>> new findings show foodies tend to be healthier than less adventurous eaters. a survey of 500 women showed those who had eaton the widest variety of foods weighed less were more physically active than more picky eaters. the findings should encourage dieters to steer away from boring salads and try new healthy foods. >>> housing the millions expected for the papal visit is expected to be a challenge. many residents in philadelphia are looking to cash in on pope francis' visit by renting out their homes. but the city wants to get a cut of that money. we have new details on a new law straight ahead. >>> we have an alert about a scam being carried out by people pretending to be

she is helping me hand to advocate for cures for cystic fibrosis, alzheimer's, als and parkinson's. think that you should gift money to cure these diseases that are bad. i couldn't have said it better. the frequent also on her face. frequent also on her face. i've been thinking of her a lot and missing her. the house passed that measure last week. the bill awaits action in the senate. we're going to keep an eye on this one and let you know whether it passes. grit work, sarah. during pope industry i to philadelphia, the rail tickets why are go on sale monday. you must prepurchase. there's a lot you need to know. not all regional rail stations will be in operation. only 18 out lying stations will be used. also your one-day pass will be valid during a specific time slot at a specific station that means you'll need to know what time you plan to travel and where you'll be boring where you even buy your ticket. for details about the stations that will be used and the time slots, you can go to myfoxphilly.com. you'll find the information you need under as seen on tv. the one-day passes wil

cystic fibrosis is quite deceptive.outside. >> do you. >> it is funny because actually i have really advanced stage disease becomes 35% lung function, it is a progressive fatal genetic disease, so, you know, it worsens with time. and so really it is quite urgent, you know, i am really fighting for my life, and the work we are doing is my hope for our future. >> i think what's is amazing your fighting for your life but also helping others with what you are doing. raising $1.5 million? that's amazing. >> yes, and, you know, real ill powered by the community. amazing the work we're doing, still have a ways to go. >> digestive system, makes breathing hard. i cough a lot. dow about three, four hours of treatments a day, to try to delay progression of the disease. take lots of pills. i have cs related diabetes, common complication for adult with cysticfibrosis, so i take insulin injections, real ill our goal to try to prolong, you know, delay progression of the disease, for as long as possible, and hopefully in time, you know

major new drug that will improve the quality of life with more than 10,000 people living with cystic fibrosis. the investments included in 21st century cures will help us make more of these kinds of groundbreaking advances a reality. mr. speaker, for all the bipartisanship and positive aspects of this bill, i would be remiss if i didn't point out one glaring inconsistency. despite numerous hearings, roundtables and forums on this bill, a controversial policy rider that restricts access to abortion was added to the bill that came before the rules committee. it's like the majority couldn't help themselves. they couldn't resist an opportunity to add a contentious rider to an otherwise bipartisan package to advance medical research. i'm pleased that the committee made in order an amendment offered by my friends, barbara lee, jan schakowsky and yvette clarke to strike these controversial policy riders. but the committee prohibited a number of other amendments from coming to the floor for debate. out of the 36 amendments submitted for consideration only eight will be considered on this floor during

millions of americans with conditions like cancer, alzheimer's, a.l.s., cystic fibrosis and others stand to benefit from this research. mr. speaker i urge my colleagues on the other side of the senate to get behind us and pass the 21st century cures and i urge my colleagues in this house to stand up today and express an important vote in support of this act. mr. speaker, i yield back. the speaker pro tempore: the gentleman yields back. the chair recognizes the gentleman from texas mr. weber, for five minutes. mr. weber: thank you, mr. speaker. i rise today to speak on the p-5 plus one nuclear agreement with iran. no longer do we have to guess at rumors or wonder what the deal is. we now know. we know that enrichment despite earlier promises will continue. we know that the arms embargo will be removed. we know that the entire sanctions regime covering problems with human rights abuses, terrorism, and ballistic missiles programs will cease to exist. we know that iran has the capability of usurping any time, anywhere inspections program thanks to required advance permission for each individ